“ ANGELina’s Warriors of CHD Awareness –Arka profile picture

“ ANGELina’s Warriors of CHD Awareness –Arka

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About Me

Hi we are Brandy and Tom. We had a son Nov. 20th 07 who was born with CHD. Since he was born we have started to spread the word about CHD. We didn't know anything about CHD or how many babies it affects until our son was born. Our mission is to tell anyone around us who will listen all about CHD. We hope to get it to where all babies are screened for CHD. Our son Trenton may be put on the heart transplant list. He is going back in the hospital and that is where we will be making some hard decisions. Please keep him and us his family in your thoughts for strength as we try to get through this time. You may stop by and keep up with Trentons updates here.. http://www.caringbridge.org/visit/trentonhowardHave you ever heard of Congenital Heart Defect (CHD)?
You should.
It affects 1 in every 85 babies!
CHD is an anomaly of the heart that is present at birth. CHD's cause one or more portions of the heart to develop abnormally.
At least 35 distinct forms recognized.
CHD is the number 1 birth defect and is the leading cause of birth-defect related deaths.
40,000 infants are born with CHD each year in the U.S.
(Still, newborns are not screened for CHD's.)
And although it is the most common birth defect, it is the LEAST publicized.
I mean, have you heard about this?
With these numbers being so high, how likely is it that your baby ,a friends baby, or someone's baby living close to you will have a CHD?
VERY LIKELY
There is no known cause for CHD, (although genetics is the number one suspect.)
CHD strikes children without regard to economic level, ethnic origin, sex, geographic location or religious beliefs.
And there is no cure for CHD, only LIFELONG treatment.
Help us raise awareness
And sign this petition to raise awareness in the media.
Just click on the banner.
Or go to :
http://www.gopetition.com/petitions/media-awareness-for-chd. html
I am a CHD warrior and I hope you would be one too.
Repost this so all your friends can see it and tell them to sign this petition so we can reach 50,000 signatures.
I know it sounds like a lot but with your help, we can do it!
A CHD affects 1 in 85 babies born!
Yet not many know about CHD until it affects their child.
Help to raise awareness today!
It's not that hard! Let's do something good! Click the link above (or copy the website, read the information about CHD and the mission) and sign it! And then come back to this message and just click reply and copy the information and then repost! :)
Also add :
www.myspace.com/angelinasfriends

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My Blog

my son got his new heart. He is 3mths and is at 11 pds

3 month old Trenton got his heart late night it took 5 hours and he has peed 103 ml on his own.. They did to dyalisis to remove extra fluid from him. Thank you warriors of prayers love Brandy
Posted by on Fri, 07 Mar 2008 21:25:00 GMT

Adam Scott Goseland needs your support and prayers

..> Jessie Goseland ,Mike Goseland Need your support Body: My brother is 18 years old. He has survived until now with a condition known as Hypoplastic Left Heart Syndrome. When he was born, his co...
Posted by on Fri, 29 Feb 2008 22:42:00 GMT

Faces of CHD

Send me yours and what the defect is so I can add you to my photo album. I want the world to see who CHD affects.. God Bless Much love Brandy
Posted by on Thu, 31 Jan 2008 17:30:00 GMT

Please pray for our baby and other babies

Please friends pray for my son Trenton he is 2 months old and has Chronic Aortic Stenosis and a few other things wrong. We have learned his heart function went from 80% down to 40%.. We are scheduled ...
Posted by on Thu, 31 Jan 2008 15:47:00 GMT

Please Pray for these families

Friends and family I come to you and ask that you keep Trinitys family in your prayers. She passed away around 3pm. They arrived in CVICU while we were there and have been there since she was born. Sh...
Posted by on Tue, 29 Jan 2008 02:00:00 GMT