CHDspace & CHD Awareness profile picture

CHDspace & CHD Awareness

February 14th, 2008 is NATIONAL CHD AWARENESS DAY! Awareness and Education are the keys to a better

About Me

About Me:
I am a husband, father, son, brother and friend. My family is my world. My son (as I am told) is just like me, so I am in trouble I think. In all honesty it is the greatest thing in the world. I couldn't imagine life without him or my wife. The Reason:
I am a CHD Survivor. As many of you know or don't know I have grown up with a heart condition called Sub-Aortic Stenosis (sub-aortic meaning below the aorta), I have some mild aortic regurgitation, hypertension and PVC! I had Open Heart Surgery at Boston's Children's Hospital on 2/13/1985 by Dr John Mayer. Through the years I have not thought about down the road until my last annual appointment with my Cardiologist Dr. Mary Mullen from the BACH unit in Children's Hospital Boston. I am also in the beginning stages of writing a book about my situation. I have created this page to bring all CHDer's and groups together to provide a platform of voice for those that need it! Anyway hope everyone stays strong! My Facts:
Justin (29) AS: Aortic Stenosis, HBP, PVC's, Mild Aortic Regurgitation, Sub-Aortic Stenosis surgery survivor, 2/13/1985 Children's Hospital Boston, MA; Surgeon Dr. John Mayer! Test subject for the Bypass machine for children during my OHS. Dr. Mary Mullen BACH Program.

My Interests

I'd like to meet:

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Make an on-line slide show at www.OneTrueMedia.com ..
Make an on-line slide show at www.OneTrueMedia.com

My Blog

Where I have been!

OK so many of you may have been wondering where I have been! Well my wife and I are expecting our 2nd child in the next 2 weeks! So right now we are playing the waiting game with baby number 2 (we do ...
Posted by on Mon, 10 Mar 2008 14:53:00 GMT

My CHD Article that will be in IMH Dispatch.

This is the article I wrote for It's My Heart's Dispatch newletter. I am also involved with the It's My Heart - Boston Chapter as well so check out their website at www.itsmyheart.org. ...
Posted by on Tue, 12 Feb 2008 06:14:00 GMT

RECRUITING AN ARMY OF ANGELS

Muchisimo ANGELina needs 50.000 Signatures for CHD Awareness This is a fantastic idea... Come on lets see if we can get other states and countries involved Date: 16 Jan 2008, 11:06Last night I had a t...
Posted by on Fri, 18 Jan 2008 16:01:00 GMT

GUCH (Thanks CHD UK)

GUCH is the UK equivalent of the ACHA.GUCH stands for Grown Up Congenital Heart. ACHA stands for Adult Congenital Heart AssociationGUCHs are also the first generation of survivors.  I AM A GUCH.D...
Posted by on Thu, 17 Jan 2008 04:47:00 GMT

This space is your space! Use it!

Thanks Brooke aka Brooke & CHD Awareness   So here is my thought. Justin AKA http://www.myspace.com/chdspace has set up this page just for us. If we could all join along with all the people ...
Posted by on Wed, 16 Jan 2008 08:13:00 GMT

CHD Facts (Thanks Its My Heart, http://www.itsmyheart.org)

Thanks To It's My Heart, http://www.itsmyheart.org! For current statistics on CHD's, we recommend visiting the following sites: Children's Heart Foundation at http://www.childrensheartfoundation.org M...
Posted by on Wed, 16 Jan 2008 07:49:00 GMT

Traveling Awareness Heart (Thanks Vanessa w/ CHD HEART)

Traveling Awareness Heart This is where I will update on where the heart is for public display. Travel Schedule (to date):   JAN 08 ~ ARKANSAS FEB 08 ~ KENTUCKY MAR 08 ~ NEW YORK APR 08 ~ MASSA...
Posted by on Wed, 16 Jan 2008 06:19:00 GMT

About the ACHA (Adult Congenital Heart Association)

About ACHA (www.achaheart.org) Our Work ACHA Toolkit InitiativeAll Congenital Heart Defect survivors should have the "toolkit" they need to protect and improve their life-long health and well-being. H...
Posted by on Tue, 15 Jan 2008 07:02:00 GMT

A Must See for everyone!

Children's Healthlink Special: Heart Center December 26, 2007 | Heart and Blood Vessels In a one-hour special, KING 5 follows the medical team and patients at Children's Hospital's Heart Center. Here ...
Posted by on Mon, 14 Jan 2008 10:58:00 GMT

So many new CHD updates & info... (TY CHD UK! )

..> Date: Jan 13, 2008 10:20 AM Subject: so many new CHD updates & info... (TY CHD UK! ) Body: ----------------- Original Message -----------------From: CHD UKDate: Jan 13, 2008 5:31 AM ***...
Posted by on Sun, 13 Jan 2008 08:18:00 GMT