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About Me

CHRONIC LYME DISEASE In some patients, Lyme disease can be fairly easy to treat while in others, it can feel like a never-ending battle. Chronic Lyme disease, which is surrounded by much controversy, is a systemic, debilitating condition which persists despite antibiotic therapy. The seriousness of this condition and its resistance to treatment necessitates an individualized treatment plan not based on arbitrary insurance guidelines.Chronic Lyme disease is also unique in that it is widely misunderstood and surrounded by controversy, leading to problems with physicians, friends and family, insurance companies, disability coverage, etc. The devastating symptoms and the myriad of secondary issues Lyme disease patients face often combine to leave the patient feeling overwhelmed and discouraged.There is no established cure for chronic Lyme disease. The response to treatment varies greatly from patient to patient. Many patients find they need to stay on antibiotics long-term (ie. years). Patients may also need antibiotic combos, coinfection treatments, symptomatic medications, and natural therapies. With these treatments some patients experience full recovery. Those who don't are left to continue the search for treatment options.Support groups, both online and offline, are very helpful for patients suffering with chronic Lyme. These groups enable patients to learn about new treatment options and to connect with others facing the same uncertainties.Increasing numbers of those with chronic Lyme disease are being found to have other tick-borne illnesses as well. These other illnesses contribute to the difficulty with treatment. For more infomation about coinfections, see Coinfections.html.Hi Im Lisa. I am a medical assistant.I work at a nursing home and at a home health care agency. On weekends I DJ. Mom of three kids. That are mostly grown up now. And I have Lyme Disease. Most of this page is devoted to lyme awareness, but once in a while I remember I used to have a life before this disease hit. Hope I can help anyone with any questions they may have. But I am not a Dr just someone that has this damn disease like you!ABOUT LYME DISEASE The CDC documented over 23,000 new cases of Lyme disease in 2005, however they estimate that only 10% of cases are reported. Over 230,000 new cases a year is more than AIDS, West Nile Virus and Avian Flu combined.Cases have been reported in 49 states.It takes the average Lyme patient over four years and $60,000 to be diagnosed, and many are denied treatment.Known as “the great imitator,” Lyme mimics ALS, Alzheimer’s, Chronic Fatigue, Fibromyalgia, Lupus, Multiple Sclerosis or Parkinson’s – a reason thousands go misdiagnosed each year...OTHER GOOD LYME FORUMS: lymenet.com TruthAboutLymeDisease.com canlyme.com http://bcclocks.com/lyme.htmlAuthor Paula Langhoff is writing another book and is looking for unique Lyme experiences. Send me your stories and I will forward them to her. Thanks bunches. She also wrote "The Singing Forest" about her experience with Lyme........................................................ ............................................................ ................WHY WE DON'T GET BETTER ON SHORT TERM ANTIBIOTICS: (From Dr. Burrascano)............................................ As the spirochete has a very long generation time (12 to 24 hours in vitro and possibly much longer in living systems) and may have periods of dormancy, during which time antibiotics will not kill the organism, treatment has to be continued for a long period of time to eradicate all the active symptoms and prevent a relapse, especially in late infections. If treatment is discontinued before all symptoms of active infection have cleared, the patient will remain ill and possibly relapse further. In general, early LB is treated for four to six weeks, and late LB usually requires a minimum of four to six months of continuous treatment. All patients respond differently and therapy must be individualized. It is not uncommon for a patient who has been ill for many years to require open ended treatment regimens; indeed, some patients will require ongoing maintenance therapy for years to remain well. Several days after the onset of appropriate antibiotic therapy, symptoms often flare due to lysis of the spirochetes with release of increased amount of antigenic material and possibly bacterial toxins. This is referred to as a Jarisch Herxheimer-like reaction. Because it takes 48 to 72 hours of therapy to initiate bacterial killing, the Herxheimer reaction is therefore delayed. This is unlike syphilis, in which these reactions can occur within hours.
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My Interests

I'd like to meet:

I'd like to meet Barrack & Michelle Obama, Deepok Chopra, Carolyme Myss, Sylvia Browne, and any of the ILADS MDs that are trying to help people with Lyme Disease

My Blog

Some aspects to dealing with lyme disease

People don't understand when you have lyme you also have to deal with, yeast problems, parasites, heavy metals, co-infections, herxes, allergies, mold issues, detox, neuro toxins, alcohol intolerance,...
Posted by on Tue, 19 May 2009 07:42:00 GMT

But you look good!

http://flash.lymenet.org/ubb/Forum3/HTML/008886.htmlBut You "LOOK" Good!The wrong thing to say to someone with a chronic illness.(well, I don't mind hearing it.....hehe ~Stacy)What Is A Chronic Illnes...
Posted by on Tue, 28 Apr 2009 08:35:00 GMT

Spiritualism vs Christianity

Wow have I been blasted for some of my views on Spiritualism.  Sorry I am an open-minded person and don't want to limit my views to one religion or the other.  I think there is good in many religions....
Posted by on Mon, 06 Apr 2009 09:35:00 GMT

Whose your favorite American Idol?

Whose your favorite American Idol this year?  What about other years? 
Posted by on Sat, 28 Mar 2009 15:49:00 GMT

Friends- update your progress with Lyme disease, MS, Chronic Fatigue, Fibromyalgia

I feel so bad that I cannot always know where everyone is in their progress, or lack of progress, treatments, and just in general how they are doing, so please if all my lyme friends, MS friends, chro...
Posted by on Fri, 27 Mar 2009 08:57:00 GMT

lyme disease

..Sunday, November 23, 2008  ....Lyme Info ..I found this info on lymelight.net Find A Specialist Lyme Disease is named for a small town in Connecticut, USA where, in 1975, 51 cases of pediatric arth...
Posted by on Fri, 27 Feb 2009 08:01:00 GMT

Lyme cured in three weeks with Doxy...

Yeah right!  We know the truth, those of us who are still suffering.  Im tired of the ignorance of Drs.  All my lyme friends, chime in here with all your treatments, including, medicine...
Posted by on Sat, 04 Oct 2008 18:17:00 GMT

DR Jones on trial for treating lyme

Holiday Enterprises is supporting Dr. Jones and his Lyme trial                           &nb...
Posted by on Mon, 09 Jun 2008 04:40:00 GMT

History Of Lyme Disease

The History of Lyme disease .. --> ParagraphTitleEnd --> .. --> ParagraphBodyStart -->.. --> ParagraphTitleEnd --> .. --> ParagraphBodyStart --> ..TR> Year Event 1883 The first recorded case...
Posted by on Mon, 09 Jun 2008 04:36:00 GMT

Funny Lyme Jokes

SYMPTOMS CHECKLIST FOR NEUROLOGICAL LYME(to be filled out by Lyme patients only)Written by the talented Judy Williams at [email protected] you Judy for sharing!1. Sudden onset of multiple persona...
Posted by on Thu, 06 Mar 2008 08:49:00 GMT