The finest parts of me Are only shades of you profile picture

The finest parts of me Are only shades of you

this may hurt alil, but its something u'll get used to

About Me

Well if you know me personally then you know all about me. I have a five year old daughter named Angel. I have a disease called Pompes disease. I've been fighting this disease since I was thirteen years old and I'm still here. I wake up every morning fighting this battle and know the final out come. The one thing people over look about me the most is just what it takes to be me. I'm hard as a rock, I don't choose to be that way. With everything I've been through I have no choice but to be that way. You would be to, believe me. My life has been a constant taste of disaster with a couple of breaths of fresh air, My daughter and Myozyme. Myozyme is a new Enzyme replacement therapy that I guess is going to save my life. I've been on Myozyme for a little over a year now and yes it is saving my life. I've made a very good amount of improvements so far. So just pray for me and let god take your path is his own hands.

My Interests


YOU'RE A SUBSERVIENT! Subservients are submissive, but with an attitude: You know what it takes to get the job done, but you want your partner to do the heavy lifting. You're the type of lover who brings out the dominant and uninhibited side of a partner. And you're the lover of whom role-players dream, because the tamest of Subservients will go along with outdoor sex, while the wildest of this group indulges in sex toys and costumes. You're curious and willing to explore, and once things get going you'll work just as hard to make sure your partner is satisfied.
You're a Shining Star! Shining Stars have a zest for life that is truly inspiring! When the spotlight's on you, hardly anyone can shield their eyes from your marvelous glow. Lucky for them you're the type of person to encourage everyone to join in. Shining Stars adore the endless possibilities in life, and tend to be upbeat and on the go. The party never stops for a Shining Star!
You're a Lover! As a Lover, you believe that love conquers all, and live life accordingly. When Lovers fall in love, nothing is halfway — all energies go to making that relationship the most wonderful in the world! Roses, candlelight, gifts — no romantic gesture is too large or too small. They give their hearts easily, they share easily, they trust easily. And it's easy for people to love Lovers, because they give and receive affection so well. A relationship with a Lover is a journey worth taking. Full steam ahead!
..I'm into fast cars, hot bitches, and rock music! I like to hangout,...... but all this comes after being THE BEST DAD N THE WORLD!!!!
Myspace Layouts The Icon X on Fire 3MG PRO Massive Layouts NES Frankenstein NES NES MUSIC PROFILEMurder Central NES The Shinning NES NES MUSIC PROFILE
NES Layout NES Myspace Music Profile Holly Madison LayoutCatra Pink

Contact Tables Icon X NES Frankenstein Murder CentralNES Holly MadisonCatra Pink
Network Tags Girls Next Door Icon X Murder Central Catra Pink

I'd like to meet:

Marilyn Manson, I think Manson is a true artist. He lives what he writes, he paints, hes a very smart man. Maynerd James Keenan, I think is a crazy man. He is amazing in the way he veiws life and the things around him. Jordie White aka Twiggy, he is a bad ass bass player. He makes me wanna play bass. I think bass players are so under estimated compared to great guitar players. I also like Steve-o and Bam Margera, I would love to live their lives and walk around doing whatever I wanted, whenever I wanted, and get paid for it. Those guys Rock.

Massive Graphix
CHECK OUT MY MASSIVE GRAPHIX PAGE! I can pretty much do whatever u want. I like to do stuff for local bands. So if u got any ideas just holla atcha boy!

Music:


Movies:

..My favorite movie of all time has to be Pulp Fiction,I'm just basing this on how many times I fuckin seen that movie. Other movies I like are: one flew over the cuckoo's nest, matrix, fight club, saw movies, clock work orange, reservoir dogs....yata yata yata
..

Television:

..MXC is awesome, UFC is fuckin bad ass (all mma), jack ass, viva la bam, wild boys and just funny stuff, oh and the news once in a great while..

Books:

....books, omerta. just crazy stuff like that...

Heroes:

..my daughter, shes a miracle in her own right...

My Blog

health update

Well I had an appointment down in Ann Arbor yesterday. Everything went quite well. My breathing has improved tremendously and I'm gaining my weight back. So things are starting to look up again. I've ...
Posted by The finest parts of me Are only shades of you on Thu, 28 Feb 2008 11:01:00 PST

Alone once again

Its getting so hard to explain,how alone feels like home again.Its been a decade since I felt this way.Who knew happiness had it's price to pay.So I push it aside and I hide and I hide,and deal with i...
Posted by The finest parts of me Are only shades of you on Sat, 23 Feb 2008 09:53:00 PST

a picture

i pass by the picture on the walli straighten it, from time to timei don't know how it gets so out of line.I'm never homejust a reminder of a frozen daycaptured in time and far awaylocked away in my m...
Posted by The finest parts of me Are only shades of you on Wed, 13 Feb 2008 03:03:00 PST

one night of light destroys all of the darkness of the past.

Loud music plays, every screech and squeal echoes in his head. He sits and watches as the local rythmic noise makers continue their performance. Then suddenly through all of the smoke and lights a ha...
Posted by The finest parts of me Are only shades of you on Mon, 11 Feb 2008 12:18:00 PST

my new bday present to myself

this is my new present to myself. a 99 s10 extended cab with a 3rd door, v6 with 89,000 miles, power everything. i'm so frickin happy right now. heres some pics.ya boy!!!!! Mr. Massive is back bitches...
Posted by The finest parts of me Are only shades of you on Fri, 08 Feb 2008 12:28:00 PST

clarity

This is why I write the things I do, it's quite simple. This is my new release. My journal is cramed packed full of these stories, poems, and just small parts of my life. This is my own therapy in ot...
Posted by The finest parts of me Are only shades of you on Thu, 07 Feb 2008 01:26:00 PST

what is love

what is love?can it be found in one night?one circumstance?one situation that brings two peoples paths together?is that love, the way one night makes you feel?the sight of a single light in the depth...
Posted by The finest parts of me Are only shades of you on Thu, 07 Feb 2008 12:43:00 PST

I gotta stop writing this shit

Purity once had a name,And beauty once had a face.Life once had a meaning,And for once I felt safe.Once there was freedom,And once I could laugh.Happiness once was alive,And once I had a better half....
Posted by The finest parts of me Are only shades of you on Thu, 24 Jan 2008 12:08:00 PST

Check out this video: Him

Check out this video: Him Add to My Profile | More Videos...
Posted by The finest parts of me Are only shades of you on Tue, 22 Jan 2008 02:22:00 PST

anger fear jealousy confusion

 Anger, Fear, jealousy  and ConfusionThe four emotions I feel on a constant basis.From most encountered, to a waste of timeAnger, Fear, Jealousy, ConfusionThings I do, never to be acceptedA...
Posted by The finest parts of me Are only shades of you on Fri, 18 Jan 2008 07:03:00 PST