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I've been sick all of my life then in 4th grade everything got worse I would get migraine headaches that would last for months. Then in 7th grade it never went away I still have it now 24/7 even in my dreams/sleep. Then I also got a 24/7 stomach ache and a bunch of other symptoms that I still have now. No medications would ever or will ever take any of my pain away. I have been sent from doctor to doctor hospitals and clinics ( I've seen more than 30 doctors ) all who would only treat my symptoms and not try to find out the root cause, until I found the doctor I have now who told me I have Lyme disease but, that was only last year that I finally was told what was wrong with me. Before all the doctors would give each of my many many many symptoms each their own diagnosis or name they would all tell me I was their exception they could treat everyone but me so they'd send me to another doctor or give up on me. But finding out I had Lyme was a little funny in a frustrating way b/c I had been tested for it many times but the tests those doctors used are basically undiagnostic and it wouldn't have shown up positive b/c I have no immune system left. This doctor knows what tests to run and what Lyme looks like from joint pain and fatigue to MS to ALS to blindness to hallucinations, headache and stomachache and even death. So to get treated I had to drive from M.D. to M.O. and stay there on IV antibiotics for 6 months. And with Lyme b4 you can get better you have to get worse so the IVs gave me bone and joint pain along with everything else. Because of the Lyme disease I also have many other sicknesses. Now that I'm back home I should be having some good days but everything got even worse now along with my 24/7 head, stomach, muscle, back, neck pain, fatigue and dizziness etc...I have 24/7 bone and joint pain, my hair is falling out etc...My doctor is even stumped as to when I will be feeling better, which was really hard to hear because she was our last resort. Even with one of the leading doctors in Lyme disease I'm still the exception she even tells me that...nice to feel special but its a kind of curse as well. The IV's antibiotic's brought out more bone and muscle pain and attacks but going on orals has made the pain even stronger. And now I'm going back on IV's again. I would not wish my pain on anyone, My Mom has said she wishes it was her but I don't it's my pain for a reason, one of the reasons being we both know I'd deal with it better. Even people with cancer tell me they are glad they are not in my place. But I'm not giving up. Thank you to everyone who has read my about me section and sent nice comments <3 And to anyone who is sick and doesn’t know what they have that is making them sooo sick please check out Lyme disease as an option. But also contact me b/c many tests that doctors use come back negative even if you have it and not many doctors know how to treat it correctly so it won’t come back. My doctor is the leading doctor in Lyme disease and has educated me as well as her fellow patients in her treatment room where I was treated on I V’s. Sending Love xoxo ~ Julia, Jewels, or Kat or any name you wish to call me xoGroup for teens with Lyme disease. and Lyme Blogbtw if u want to see pics of me leave me a message, i dont keep them up bc it creeps me out but if you ask i will put them up for a bit.My sickness has taken over my life right now there is not much else to me. I try to be a good little Christian girl but sadly I live in my mind (that isn't well) my dreams (which never come true) and my regrets. But I learn to live with my pain and my crazy mind and I'm trying to be the person who I want to be. I don't believe anyone has actually met me yet because I haven't met myself yet or rather never been myself.
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