Fibromyalgia profile picture

Fibromyalgia

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piDesigns Hi! My name is Beth and I will be taking over this site from Lynette. She has been kind enough to let me do this and I know that we all pray that she will be feeling better soon. I just wanted to take this opportunity to introduce myself and I hope that you will all stay with me and continue to support all of our friends with Fibro and all chronic pain syndromes. I have been suffering unknowingly with Fibro for the last 15 years. I'm pretty sure I had it before that as well, but even CFS wasn't highly regarded as being real back then, and I worked in a hospital! Anyway, I got very sick 3 years ago after I took a tumble down some stairs. Since then it has been a vicious circle of meds and doctors who just thought I was crazy and told me to "stop stressing so much," and "we don't know what's causing your pain." Regardless of the Fibro, I have a degenerative disk disease, and osteoarthritis in my neck and spine. I can't imagine why any of that would hurt! Oh, and before I go on, I am an Army wife, so these are ARMY doctors...last year I finally mentioned to my PCM that I had the symptoms of MS, so they sent me to a neurologist and ruled out everything but MS. Then, they just stopped seeing me. So, for this past year, I have been mislead into thinking I had MS, but they offered no treatments or support. My husband deployed to Iraq for the second time, and I just said "screw it," and stopped going to the doctors. Most days I felt well enough, with the bad days here and there, sometimes just lasting a few days, or other times, a few weeks. I just dealt with it like I always have. Finally, this May, I got very ill and was vomiting for 7 days without end. I lost 15 lbs. in a week. 3 trips to the ER and they sent me home with pills to take when I couldn't even hold down water! They finally admitted me overnight, pumped me full of fluids and meds and sent me home the next day, still without any answers. So, I did some more research online, looking at MS again, and came across a fibromyalgia site. I had read about it before, but just never connected. This time it hit me! There it is! That's ME!!! I went to my follow-up appointment with a folder full of fibro info and told my doctor, this is what's wrong with me; this is why I feel so horrible all the time and can't sleep, and feel like a 90-year-old woman. My hair is falling out in clumps, I had a rash all over, I was using my cane to hold myself up, and this is what he said..."do u have a bible? Maybe if you went to church you would feel better?" After I picked my jaw up off the floor and got my sobs under control, I told him I wanted to see a specialist. Not a shrink, not a shaman, but a real-live, off-post, non-military doctor. On June 30th, I went to Nashville and met Dr. Leslie Cuevas. After about a half hour chatting, showing her my past 3 years of medical history, and her examining me, she said the magick words, "you have all the classic symptoms of fibromyalgia. Do you think you have fibro?" I told her indeed, I did, and she prescribed Lyrica for me, and gave me a big hug! I was never so happy to hear anything in my life! Finally, I can move forward, get on with it, and get myself back on track. I know it's not fun, it's painful and interferes with everyday life; but at least now I know. I can take steps towards healing myself and I also know that I'm not alone, and I'm not crazy! Fibro is very real. The people I have met in the last 2 months have been SO inspiring. So many of us have been suffering for years without support and that needs to stop. I want to make sure this site keeps helping and informing FMS/CFS patients and their loved ones and families. Sorry for blabbing so much! I look forward to hearing from you all and I will be adding info and changing the page around a bit, but it will ROCK! Thanks for your support! Much Love. If you wanna know more about me, my other myspace ID is: www.myspace.com/talon7461

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Busy, busy...

I just want to apologize to everyone for not being around much this last month. My sweetheart is coming home from Iraq SOON, and I have been crazy busy getting ready, and trying to relax and not stres...
Posted by on Tue, 07 Oct 2008 06:20:00 GMT

Im never going to give up

Ok, just a short blurp here; I've been having a bad week, but just wanted to say that I HAVE FIBRO, but it DOES NOT HAVE ME! I am a strong, stubborn, educated, opinionated woman, and nothing I have se...
Posted by on Fri, 25 Jul 2008 21:26:00 GMT

costochondritis (chest pain)

I have been having the most horrible sharp pain in the right side of my chest for over a week.  I can't lay flat or on my right side without a very sharp pain.  I also get sharp pains when I...
Posted by on Sat, 07 Jun 2008 19:12:00 GMT

Canibus...Not just good for Libido

Okay, I'm going to do some confessing here...I tried canibus due to a suggestion from a friend to increase my libido...It worked, but it also works as a pain reducer.  No, it doesn't take the pai...
Posted by on Wed, 30 Apr 2008 14:39:00 GMT

Lost your libido to Cymbalta?

My sex drive has declined significantly due to Cymbalta.  I hate this, BUT...I found something that increases my libido....Canibus!
Posted by on Tue, 29 Apr 2008 22:45:00 GMT

Mouth Sores

Hello!  On one of our blogs, some of you mentioned sores in your mouths.  Does anyone experience this?  I have them on the back of my tounge and roof of my mouth.
Posted by on Tue, 29 Apr 2008 22:43:00 GMT

Soma and Percocet

I went to the ER for the muscle spasms and the Dr. gave me soma and percocet.  They both work well for me except the make me feel "loopy".  Does anyone else take these and if so, do they hel...
Posted by on Sat, 15 Mar 2008 13:23:00 GMT

Muscle Spasms

I’ve been having muscle spasms in my back between my shoulder blades.  Does anyone else have this problem?
Posted by on Sat, 15 Mar 2008 13:21:00 GMT

Fibromyalgia..."Burning itself out" ???

I went to a psychologist last week that told me he has treated patients with Fibromyalgia and it has "burned itself out" or "gone away" over time.  Has anyone ever heard of this or know anyone th...
Posted by on Tue, 19 Feb 2008 23:44:00 GMT

DUH!!!

Has anyone seen a Phsycologist or Phsychiatrist?  My Dr. is suggesting one because "he feels I'm depressed"....No really????  My life has just been RIPPED away from me of course I'm depresse...
Posted by on Fri, 18 Jan 2008 20:35:00 GMT