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I am here for Friends and Networking

About Me


Myspace Layouts My name is Sunkawakan. I am a Lakota boy, Hunkpapa & Oglala. I also have Lyme Disease. I contracted it in utero from my mommy. She got so sick from a tick bite. Look at how tiny the ticks are...so small...My mom was bitten by 2 ticks, 2 separate bites! One as a child & one as an adult. The 2nd tick in bite 1996, put her over the edge with illness. But no one knew what was wrong with her! The doctor told her it was ring worm. Many years, went by and my mommy got much sicker. She was finally diagnosed with MS but she knew it was not & refused to take any medication for this condition. You don't have a fever for many years, if you have MS. Among many, many other symptoms, doctors tried was just in my mommy's head! ********************************************************* None of the doctors believed something was really wrong with her. She has really suffered alot. Because doctor after doctor missed my mom's serious illness so long, it was passed on to me through her womb. I have been very sick ever since birth! ********************************************************* Against, no one would believe my mommy that something was really wrong with me! They refused to test me for Lyme Disease even knowing my mother had it. Instead at almost 3, I was referred to the psychiatrist for Lithium for Bipolar. And my mommy was told to read, "The raging child." ********************************************************* The doctors were again, horrible & verbally abusive to my mommy when she told anyone there was something really wrong with both of us!She also could not get her disability SS approved either for over 4 1/2 years b/c the government said she was not really sick. After working 26 years, my mommy could not get what she paid into...My mommy has fought system after system to get us both the health care with need to save our lives! There were alot of very mean people, trying to stop her....but she did not give up! We finally got it! It took years! We have a long way to go until we both feel better! *********************************************************** It looks like it is up to us, Lyme babies to educate the world that Lyme can be passed through the womb!!!UNDER OUR SKIN: THE TRUTH ABOUT LYME DISEASE Me and my mama. She is always kissing me and saying how much she loves me...I pretend I don't love her back...to make her mad ;) She says it because I am Oglala that I am so unshhh! Ha ha! : )They don't call me Horse for nothin' HA HA!

My Interests

I'd like to meet:

I would like to meet Lyme babies, DR. JONES' PATIENTS their mommies, my mommy's friends. I would like to meet other kids who have symptoms like me: fever, green urine, irribility, over da-top seperation anxiety, learning disabilities, speech & OT issues... ********************************************************** I want to learn more about what other kids are experiencing....Oh, the picture of me is with Gina DeJesus' nieces & WKYC reporter, Lydia Esparra. Gina has been missing from Cleveland for a long time. We can't find her. My mommy stands up for her and other kids who are missing.My friend & I at Gina's vigil

My Blog

Missed Lyme means missed lives-IGENEX (lab) reports REPOST

IGENEX IS A LAB THAT SPECIALIZES IN TICK BORNE ILLNESS TESTS!THEY FINALLY DISAGNOSED MY MOTHER & I! THEY SAVED MY LIFE!PLEASE READ!******************************************************* **************...
Posted by on Thu, 26 Feb 2009 06:31:00 GMT

Did u know there are 300 conditions that mimic Lyme disease? Check 'em out!

Lyme Disease Misdiagnosed As&By Bryan Rosner on Jul 10, 2008 in Testing & DiagnosisDid you know there are 300 conditions which mimic Lyme disease? This list is critical because if someone is suffering...
Posted by on Thu, 29 Jan 2009 07:09:00 GMT

The SCOOP ABOUT MY DR. JONES! MY HERO!!!!!

CHARLES RAY JONES, M.D Madison Towers 111 Park Street, 1st Floor New Haven, Connecticut 06511 Tel (203) 772-1123   Fax (203) 772-0682 September 5, 2008 Dear Friends, I would like to update ...
Posted by on Tue, 16 Dec 2008 14:07:00 GMT

Read Dr. Jones update letter, please donate & pass on! Thanks!

Thanks for those who donate! Sunkawakan July 9, 2008 Update: Please share this with everyone you know ASAP and ask them to help Dr. Jones, for the sake of the children with Lyme who need him. &nb...
Posted by on Mon, 14 Jul 2008 08:22:00 GMT

Watch my Dr. Jones in a movie clip

Watch my Dr. Jones in this clip from the movie, "Under our Skin." http://www.youtube.com/watch?v=MNGnsAgKT8s He is my hero! And he saved my life! Sunkawakan
Posted by on Mon, 14 Jul 2008 08:16:00 GMT

Tuesday in court w/ my Dr. Jones: Tryin to make everyone tired :(

Today was a hearing for my Dr. Jones in Hartford, CT. The medical board there is still charging him with four major wrong doings to kids.... My mama went there...I did not want her to leave but when s...
Posted by on Tue, 10 Jun 2008 15:31:00 GMT

Saving my Dr. Jones-a medicine man’s war

My friend since early childhood, asked me the other night, if I was blogging the daily things we are going through with Lyme Disease. She said that it would make a difference. She encouraged me to do ...
Posted by on Thu, 05 Jun 2008 17:51:00 GMT

Urgent message from Dr. Jones-CT Medical board is tryin to burn him out!!!!!

Tuesday, March 18, 2008 11:52 PMSubject: For distribution: Urgent Message from Dr. JonesCHARLES RAY JONES, M.D.Madison Towers111 Park Street, 1st FloorNew Haven, Connecticut 06511Tel (203) 772-1123 Fa...
Posted by on Mon, 12 May 2008 09:12:00 GMT

CT Attorney General helps Lyme patients BIG TIME!!!

Guidelines for Lyme Disease to change for the BEST! This is a HUGE step for Lyme Disease patients. I was not tested for Lyme based on these guidelines. My mother IV treatments were stopped based on ...
Posted by on Sun, 11 May 2008 07:23:00 GMT

Miracles are happening to me, Yahooooo!!!!

WHEWWW!!!! This has been quite the three months. Both my mama and I are still fighting this Lyme Disease big time!! I am doing GREAT! I went to see Dr. Charles Jones last week for my check up. I have ...
Posted by on Sun, 11 May 2008 07:08:00 GMT