I'd like to meet:
My daughter's unborn baby- We found out she was pregnant on New Year's Eve- What a blessing!
My daughter's first baby. My second grandson at 18 weeks
ARTICLE BOOK REVIEW+++++++
Article hard to see-Here is what it says-
Challenges and Inspirations
For parents with developmentally challenged children, even the most ordinary task can be a physical and emotional roller coaster. Seemingly endless therapy cycles, violent tantrums, self-injury and inflexible doctors are just a few of the daunting challenges these parents and professionals face every day, but as they maintain “that’s life†when caring for children with autism.
Autism therapist Donna Satterlee Ross paired with Red Lion resident Kelly Ann Jolly to compile stories of families across the country for “That’s Life with Autismâ€, a collection of essays about the challenges and inspirations of contending with autism and other pervasive development disorders.
Organized into chapters by topic such as diagnosis, therapy, sibling relationships, and advocacy, the book offers a selection of frank, first-person experiences from parents, followed by parent’s tips for dealing with the particular situation.
Although autism remains little understood and parents often fight an uphill battle for the support their children need, Jolly reassures these families that they are not alone. As a contributing mother says, “We are in this together. There are so many parents who are willing to help each other-share stories, share resources, and be one another’s emotional support.
Written by-Tiffany DeRewal
That’s Life with Autism: Tales and Tips for Living With Autism, Donna Satterlee Ross and Kelly Ann Jolly, eds; Jessica Kingsley Publishers, 2006; ISBN 1-84310-829-1
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A very special girl *********
Kelly Ann Jolly has four children, ages 21, 19, 17 and "little miss Shaelyn," age 5. Shaelyn came to the family as a three-month-old foster child, abandoned by a mother who left her in an unheated house. By six months, developmental problems were apparent. By 11 months, her vocabulary was limited to "mom" and "dad." The Jollys, of Red Lion, York County, had been foster parents before. They did not start out intending to adopt Shaelyn, but her sunny personality won them over. "We fell in love with her," Jolly said. "We discussed it as a family, and we said she's not going anywhere else." Even then, other issues were appearing. Shaelyn had difficulty swallowing. She wouldn't keep her clothes on. She never stopped moving. She ate dog food, not realizing that it was inappropriate to eat. She was mistakenly diagnosed with Asperger Syndrome, a form of autism, which led her mother to co-edit a recent book from Jessica Kingsley Publishers Paperback, "That's Life with Autism." Finally, Shaelyn was diagnosed with Sensory Processing Disorder, ADHD, and Neurologicall Impaired. According to the KID Foundation's SPD Network, children with SPD "misinterpret everyday sensory information, such as touch, sound and movement. Some feel bombarded by sensory information; others seek out intense sensory experiences." They may have problems with behavior and coordination. As Kelly Ann Jolly explains, "Her body feels basically suspended in space. She likes to do anything that moves. We have an electronic jeep that she rides. A trampoline in the backyard. She can swing and swing and swing." The Jollys have medical coverage, and because Shaelyn's special needs were apparent at adoption, they kept state-provided secondary insurance that helps with co-pays. Still, there are fights with insurance and medical bureaucracies--something Jolly, currently a shock wave technologist studying to be a developmental psychologist, is equipped to handle. Every inch of the Jolly house is childproofed, and Shaelyn, who has no concept of danger, can never be left alone. Jolly and her husband give each other breaks sometimes--an hour or two just to lock the bedroom door--but they wouldn't have it any other way. "With all the controversies and all the diagnoses and getting help that we need, I think every single day where she would be if she had remained with the biological mother or abandoned or in a home where they didn't love her," Jolly said. "Her smile lights me up and gives me hope." Adoption and Foster Care Resources
Picture is my friend Naor, who lives in Israel
The Dead Ocean in Israel
