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MyHotComments
Well I am a fun loving person. Love to laugh. Dont like to be negative or be around people who are. Life is to short and complicated for things like that. I love to shop, raise money for Cystic fibrosis Foundation and Relay For Life American Cancer Society. Those are my 2 that are near and dear to my heart.
I love my Brian! I have been with him for 18ish years. I know we should be married but with a terminal disease comes lots of dr appointments and I have to have GREAT ins. We accept that for now. He's my sweetie. He has taught me not worry about the small stuff, how to have fun, to be carefree. We are good for each other. I am a perfectionist hard working, well used to be, love to help anyone out, and he's all about hard working outdoorsy type but structured. Always needing to be doing something constructive. All bussiness at work and weekends are for play. Me also being sick is teaching him lots too about compassion and patients. Stuff he never thought about. So we both learn alot from we each other. Keep each other grounded.
I love my dog Bailey. She is a great companion and definatly keeps me on my toes. She is going to be 3 in January. She's my girl.
I have Cystic Fibrosis. It is a genetic disease that mostly affects my lungs, which are deterated with scarring from all the infections and coughing. I now know why I had so much trouble with coughing in school. It was the worst. I was so relieved to find out. Honestly. People think that is strange thing to say becasue how can you be releived to find out you have terminal lung disease, but when you have went through all I have with it and knew something was wrong all this time, knowing is the best thing. Now I can treat the symptoms. It may not work forever treating the symptoms but for nowits all cf'ers have. And someday hopefully soon we will be able to treat the disease.
I was diagnosed late in life from most cf'ers, it was at age 30. Had to quit my job 4years ago because of my lungs only being 38%. They have since went up to 40%. But this pretty much just happened this year. If you have any questions about it you can go to CFF.org or just ask me. I'm very open about my disease and dont mind questions. We all should educate about the disease as many children and adults die from it every year. There is no cure. It is terminal and I will most likely die from it as well. But I am a fighter. And dont let it get me down. It doesnt help anyone if I allow it to take me without a fight so its not a second thought I just do it. I have met many wonderful people because of my cf. I have had many online friends pass from it. Its a hard disease and can be a very lonely one if you allow it. Because it is not well known and coughing, which is one of the main symptoms, just isnt what other people want to hear or talk about. I am on a support site called cystic-l. I have met some fabulous people on cystic-l. They help me with so much. Well thats a about it. Hugs to you all!!:):):):):):):):):):):):):):)
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