Shones Complex Mom 4 CHD Awareness profile picture

Shones Complex Mom 4 CHD Awareness

I am here for Friends

About Me


My name is Angela, and I am a happily married SAH-mom to 3 beautiful girls.... 11 year old twins, Ashley and Dana and our newest addition, 1 year old Allison. Allison was born with multiple Congenital Heart Defects, and her journey has reminded us all of how truly beautiful and fragile our time here on Earth really is. I thank God everyday... many, MANY times everyday... for these 3 incredible children he has blessed me with. They are my joy. =*)
My main purpose in having a Myspace page is to help spread information about Congenital Heart Defects. Before our daughter was born with CHD, we really had very little knowledge of them. We certainly did not realize how common they are, or that it would be possible to be sent home with an undiagnosed, critically ill infant! I hope by putting this information out there... that some little life, somewhere, will be affected in a positive way!
Another reason I run this page is to put as much information about Shone's Complex/Anomaly that I can find all in one place. As the parent of a child with this diagnosis, I completely understand what it's like to search for info on Shone's..... there's isn't much, and what is out there is all very discouraging! I have a friends catagory devoted specifically to my "Shone's Complex Friends", this is there for those who are searching and are feeling alone..... here are about 12 other families affected by Shone's Complex for you to meet!!


Congenital Heart Defects (CHD) are a potentially lethal constellation of birth defects of the heart that affect millions of newborn infants and children worldwide; a killer that claims thousands of lives every year. Eight of every 1000 children born alive will have some form of congenital heart defect.
Of the children born with CHD, 1 in 10 have a fatal defect.
CHD is the # 1 birth defect and is the leading cause of birth-defect related deaths… While it is the most common birth defect, it is also the least publicized.
All too often, children born with a CHD show no signs of their defect until after they are sent home from the hospital. And all too often, new parents do not recognize the signs of a CHD. These symptoms can occur days, weeks, months or even years after birth. Sadly, too many children are not diagnosed until after death.
PARENTS SHOULD BE ALERT TO THE FOLLOWING SYMPTOMS IN INFANCY:
Tires easily (especially during feeding), Sweating around the head (especially during feeding), Fast breathing when at rest or sleeping, Pale or bluish skin color (especially when crying or agitated; during diaper changing, bathing), Poor weight gain, Sleeps a lot - not playful or curious for any length of time, Puffy face, hands, and/or feet, Irritable & difficult to console
SOME CHILDREN MAY NOT HAVE SYMPTOMS UNTIL LATER IN CHILDHOOD. PARENTS SHOULD BE ALERT TO THE FOLLOWING SYMPTOMS:
Gets out of breath during play, Difficulty keeping up with playmates, Tires easily, Sleeps a lot, Change in color during active play, Looks pale or has a bluish tint around mouth/nose, Frequent colds and respiratory illnesses, Slow growth and weight gain, poor appetite, Complains of chest pain/heart pounding
Currently, there are no known causes, cures or preventions for CHDs. ANYONE, regardless of race or religion can have a baby with CHD. If you don't already know someone who has CHD... YOU WILL!!
Spread CHD Awareness!
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If CHDs are SO common, why isn't there more thorough routine testing of newborns?
Why doesn't every newborn get an echocardiogram?
Why isn't there more prenatal education for parents-to-be on the signs and symptoms of CHD?
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My Blog

Interesting Article for Parents of children with LVOTO defects

Echocardiographic Evaluation of Asymptomatic Parental and Sibling Cardiovascular Anomalies Associated With Congenital Left Ventricular Outflow Tract Lesions ....Mark B. Lewin, MD*.., ..Kim L. McBride,...
Posted by on Tue, 13 Jan 2009 10:37:00 GMT

RESEARCH STUDY: Molecular Genetics of LVOTO defects, PLEASE sign up if you qualify!!!

(Our family will proudly be participating in this research effort.)RESEARCH OPPERTUNITY: Baylor College of Medicine and Texas Children's Hospital (accepting submissions through July 2009)Hypoplastic L...
Posted by on Sat, 11 Oct 2008 23:32:00 GMT

The Day I Became A Heart Mother

Borrowed from the page of a fellow Heart Mommy.....    The Day I Became A Heart Mother One day my world came crashing down, I'll never be the same. They told me that my baby was sick. I tho...
Posted by on Mon, 28 Jul 2008 20:52:00 GMT

Traveling Awareness Heart ~ Showing off the good work of a friend

This is such a wonderful thing C.H.D. Heart/Vanessa has done for the CHD community!  I just want to take a moment to show off her hard work.  I will be hosting the heart in August of 2008, a...
Posted by on Fri, 11 Jan 2008 06:02:00 GMT

Learn to recognize CHF in infants/children!

If you take nothing else away after visiting my blog... please take this!  We came home from the hospital after having Allison thinking she was a normal, perfect baby.  Ten days later, we fo...
Posted by on Tue, 16 Oct 2007 22:59:00 GMT

March of Dimes CHD Info/Facts

According to the March of Dimes, congenital heart defects are the 1 birth defect. In the US and UK alone, over 25,000 babies are born each year with a congenital heart defect. That translates to 1 out...
Posted by on Wed, 25 Jul 2007 19:31:00 GMT

What is Shones Complex?

..>..> ..> WHAT:    Shone's complex is a form of congenital (present at birth) heart disease that consists of multiple anatomic defects that lead to the obstruction of blood flow ...
Posted by on Wed, 25 Jul 2007 16:06:00 GMT

Some Mothers Get Babies With Something More

Some Mothers Get Babies With Something MoreWritten by: Lori Borgman Columnist and SpeakerMy friend is expecting her first child. People keep asking what shewants. She smiles demurely, shakes her head ...
Posted by on Tue, 17 Jul 2007 03:01:00 GMT

Very important CHD info

Please share this info with anyone you know that is expecting a new baby... I wish I had been educated on these facts when Allie was brand new!!!! This is a "MUST READ" for all pregnant wome...
Posted by on Fri, 06 Jul 2007 11:56:00 GMT

Screen siblings, parents of infants with severe heart abnormalities

Brothers and sisters as well as parents of infants born with severe, life-threatening abnormalities of the left side of the heart should be screened for less severe, but related, heart problems, said ...
Posted by on Wed, 04 Jul 2007 08:01:00 GMT