Medication Switching...
GET THE FACTS!
The Epilepsy Foundation announced a new report of survey
data obtained from more than 1000 consumers who report
an increased risk of seizures and side effects when they
have switched from one manufacturer’s formulation of
an antiepileptic drug (AED) to another. The switch can
be between different manufacturers’ versions of the same
generic drug, from a generic to the brand-name drug, or
from the brand-name drug to a generic. It can also be
caused by a switch from one manufacturer’s formulation of
its antiepileptic drug to a new formulation of the same
drug. The Foundation’s just-released survey tells the
stories that too many individuals have experienced, and
supports other newly published studies documenting that
switching can cause breakthrough seizures and severe,
unexpected side effects.
CLICK THE ABOVE BANNER TO READ MORE AND WATCH /
LISTEN TO THE VIDEO ALSO INCLUDED!
2009 NATIONAL WALK FOR EPILEPSY
Washington D.C.
Tremendous Success!
See Video Below:
..
Find more photos like this on
Epilepsy Foundation
3rd Annual National Epilepsy Walk is a
tremendous opportunity for you to highlight the many
ways that you EDUCATE your community about epilepsy,
EMPOWER those living with the condition to better manage
their care, and ENCOURAGE lawmakers and researchers to make
positive strides towards the bright future of those
living with epilepsy.
In order to highlight the growing need for awareness about
epilepsy, November has been designated as National Epilepsy
Awareness Month. This gives the Epilepsy Foundation and others
a special opportunity to inform the public about epilepsy
and concerns within the epilepsy communities. Find out what's
happening around the country.
It is our continued endeavor to help dispel myths about epilepsy,
teach proper seizure first aid and improve the
quality of life for all individuals, families, and
friends with epilepsy.
Listen to Greg Grunberg and
What he has to say about Epilepsy
by clicking on the video above!
TV Stars Rock Out to Support
Epilepsy Foundation;
New Album is "Hoggin' All the Covers"
What started out as a love for music and simply having
fun band from tvjamming with buddies has led epilepsy advocate
and ‘National Walk for Epilepsy’ chair Greg Grunberg and his
friends to an unusual place: packed venues playing rock and roll
for charitable causes, including the Epilepsy Foundation!
The Band From TV lineup includes a powerhouse of well-known and
acclaimed actors including: Greg Grunberg (drums), a veteran of
shows such as Alias and Felicity and currently starring in the
NBC hit HEROES; Teri Hatcher (vocals) and James Denton (guitar),
currently starring in the ABC hit DESPERATE HOUSEWIVES; Bob
Guiney (vocals), who appeared on THE BACHELOR and is currently
seen on TLC's DATE MY HOUSE; Bonnie Somerville (vocals); Jesse
Spencer (violin) currently starring in the FOX hit HOUSE; and
rounding out the band are accomplished musicians Chris Kelley,
Barry Sarna, Jon Sarna, Chris Mostert and child-star
turned bass player Brad Savage.
CLICK ON THE BAND IMAGE ABOVE TO LEARN MORE!
What causes epilepsy to develop in some people
but not others?
Why is it that an isolated seizure in one person
can be just that — a one-time aberration — while in
another person it triggers a worsening progression
of symptoms?
What’s going on in the brain during this measured march
toward the brain state of over-activation that we call
epilepsy? Read more by clicking on the banner below
(will open a new window) - presented by the
Epilepsy Foundation.
What is Epilepsy?
Epilepsy is a medical condition that produces seizures
affecting a variety of mental and physical functions.
It’s also called a seizure disorder. When a person has
two or more seizures, they are considered to have epilepsy.
A seizure happens when a brief, strong surge of electrical
activity affects part or all of the brain. One
in 10 adults will have a seizure sometime during
their life. Click on the Banner above to learn more!
Managing Your Care
Although there has yet to be a cure for epilepsy,
we can strive to ensure that "not another moment is
lost to seizures." People living with epilepsy can
manage their seizures and improve how they are
perceived, accepted and valued in society.
Click on the above Banner to learn more!
Dr. Alan Ettinger, Chief of the Division of EEG and
Epilepsy at the North Shore-LIJ Comprehensive Epilepsy
Centers, continues the Ask the Expert series by answering
questions you have about medications and its side effects.
Click on the Banner above to obtain more information
The Epilepsy Foundation is a voluntary,
charitable organization wholly dedicated to helping people
with epilepsy, working to solve its problems, and
supporting research to find a cure.
Click on the No More
Seizures Button above
and listen and learn
all part of the
EPILEPSY FOUNDATION
Fast Facts:
* Epilepsy is one of the most common disorders
of the nervous system.
* It affects people of all ages, races, and
ethnic backgrounds.
* More than 3 million Americans of all ages
are living with epilepsy.
* Every year, 200,000 Americans will develop
seizures and epilepsy for the first time.
* It can develop at any time of life, especially
in early childhood and old age.
FIRST AID FOR SEIZURES
First aid for epilepsy is basically very simple and is
designed to protect the safety of the person until the
seizure stops naturally by itself. If you see someone
having a seizure, stay calm, and follow these rules:
* Look for Medical Identification
* Protect from nearby hazards
* Loosen ties or shirt collars
* Place folded jacket under head
* Don't restrain
* Don't put anything in the mouth
* Don't try to hold the tongue, it cannot be swallowed
* Don't try to give liquids during or just after seizure
* Turn on side to keep airway clear
* Reassure when consciousness returns
* Don't use artificial respiration unless breathing is
absent after muscle jerks subside, or unless under water
has been inhaled
* If seizure lasts longer than 5 minutes or another starts
soon after the first, call 911 or an ambulance
To help someone you know who is living with
Epilepsy or Seizure Disorders - Contact the
Epilepsy Resource Center: 1-800-EFA-1000 (USA ONLY).
OR
CLICK ON THE HEADQUARTERS LOGO ABOVE
Or Visit Your Available MySpace
Epilepsy Foundation State
By Clicking On Logo Below:
Honolulu, HI
January 25, 2009
808-528-3058
United States Info:
The Center for Disease Control and Prevention
Information on EPILEPSY
provides news, research and information.
Disability Programs
Disability Evaluation Under Social Security
(Blue Book) General Information
United States Office For Civil Rights
A community of people living with Epilepsy.
It can be tough to cope with Epilepsy. With this site,
we hope to provide a place where anyone affected by
Epilepsy can meet, discuss epilepsy treatments
and support one another. There are many sections to
this web site including a forum section for people
for discussions, as well as resources and information.
Lennox-Gastaut Syndrome aka (LGS), is a rare and
difficult-to-treat form of childhood-onset epilepsy
that most often appears between the second and sixth
year of life, and is characterized by frequent seizures
and different seizure types; it is often accompanied by
mental retardation and behavior problems.
Click on LGS Banner Above To Learn More About LGS!
Epilepsy - is it what you think?
Visit Epilepsy Ontario, Canada
Epilepsy Ontario
Suite 308
1 Promenade Circle
Thornhill, Ontario
Canada L4J 4P8
905-764-5099
416-229-2291
800-463-1119 (toll-free, Ontario only)
905-764-1231 fax
email:
[email protected]
Epilepsy Action is the largest member-led
epilepsy organization in Britain, acting as the voice
for the United Kingdom's estimated 456,000 people with
epilepsy, as well as their friends, families, careers,
health professionals and the many other people on whose
lives the condition has an impact.
There is a lot to learn about epilepsy and seizures.
It doesn't matter whether you have just been diagnosed or
had it for twenty years, greater knowledge can be more
empowering and lead to better management and a better life.
CHECK IT OUT:
Epilepsy Action publications contain useful
information about epilepsy, seizure disorders
and our essential work.
Epilepsy 360°
Our new quarterly magazine for people with epilepsy
and their families, plus healthcare professionals
AUSTRALIA ONLY:
Ask an expert any questions you have
about epilepsy or seizures
Call 1300 37 45 37
or email
[email protected]
Eyal Israel Epilepsy Association
ISRAEL ONLY:
NOTE: Text in Hebrew, Arabic, and English
The Parkinson's Disease Foundation (PDF)
is a leading national presence in Parkinson's disease
research, education and public advocacy. We are working
for the nearly one million people in the US living with
Parkinson's by funding promising scientific research and
supporting people with Parkinson's, their families
and caregivers through educational programs
and support services.
GO. FIGHT. WIN the war on Parkinson’s disease.
Join the team and play your part. Team Fox offers
tools, support and inspiration to people in the
community who are looking for creative ways to raise
funds and awareness for Parkinson’s research. As a
Team Fox member, your fundraising efforts will support
the valuable work of The Michael J. Fox Foundation.
What is Alzheimer's disease (AD)?
Dementia is a brain disorder that seriously affects
a person’s ability to carry out daily activities. The
most common form of dementia among older people is
Alzheimer’s disease (AD), which initially involves the
parts of the brain that control thought, memory, and
language. Although scientists are learning more every
day, right now they still do not know what causes
AD, and there is no cure.
ANGELMAN SYNDROME
Angelman Syndrome (AS) has confused the medical community
and parents of Angelman children for hundreds
of years. Initially presumed to be rare,
it is now believed thousands of Angelman Syndrome cases
have gone undiagnosed or misdiagnosed as cerebral palsy,
autism or other childhood disorders.
Autism is a whole-body disorder, and there are many
treatments available - some as fundamental as changing
diets and adding supplements -- that can bring substantial
improvement and sometimes lead to recovery.
If you have a child with autism, please contact the
organizations below to find out more about autism, and how
you
can maximize the improvement and recovery potential of your child.
FAST FACTS ABOUT TRAUMATIC BRAIN INJURY:
A traumatic brain injury (TBI) is defined as a
blow or jolt to the head or a penetrating head injury
that disrupts the function of the brain. Not all blows
or jolts to the head result in a TBI. The severity of
such an injury may range from "mild," i.e., a brief
change in mental status or consciousness to "severe,"
i.e., an extended period of unconsciousness or amnesia
after the injury. A TBI can result in short or long-term
problems with independent function.
DRIVING WHILE INTOXICATED OR IMPAIRED, WHETHER BY
ALCOHOL OR OTHER DRUGS, IS ONE OF THE GREATEST HEALTH
AND SAFETY PROBLEMS IN AMERICA. IT IS BY FAR ONE OF THE
LARGEST SINGLE CRIMINAL CAUSES OF ACCIDENTS AND DEATHS
THROUGH OUT THE COUNTRY. THE SAD THING IS IT IS THE MOST
PREVENTABLE SOCIAL PROBLEMS WE HAVE.
EVERY 15 MINUTES SOMEONE WILL DIE OR BE HURT IN AN
ALCOHOL OR DRUG RELATED ACCIDENT.
Since its founding in 1950, the Muscular Dystrophy
Association has become one of the nation’s largest and
best-known voluntary health agencies. MDA provides
comprehensive medical services to tens of thousands of
people with neuromuscular diseases at some 225
hospital-affiliated clinics across the country. The
Association’s worldwide research program, which funds
some 400 individual scientific investigations annually,
represents the largest single effort to advance knowledge
of neuromuscular diseases and to find cures
and treatments for them.
Our name changed from Hallervorden-Spatz Syndrome
Association to NBIA Disorders Association.
All historical references to HSSA and HSS
were left as is.
NBIA Disorders Association
2082 Monaco Ct.
El Cajon, CA 92019-4235
United States of America
Phone: (619) 588-2315
FAX: (619) 588-4093
E-mail:
[email protected]
The American Heart Association's legislative advocacy
efforts move us closer to our goal of reducing heart
disease, stroke and risk by 25 percent by the year 2010.
Learn about key policy issues, including research and
prevention funding, access to quality health care,
stroke, tobacco control, obesity, emergency cardiovascular
care, physical activity and nonprofit issues.
Stroke and T.I.A. (Transient Ischemic Attack) can
also be BRAIN Attack and do tremendous and critical
damages to a person who had suffered an attack, leaving
them paralyzed, suffering from seizures, and much more.
Thousands of people suffer from Stroke or T.I.A which is
just as dangerous as a heart attack.
The ASAA is a non-profit organization dedicated
to reducing injury, disability, and death from sleep
