About Me

Hi Everyone! Welcome to Myositis World on MySpace. So glad you found me. My name is Jackie. A lot of people on the Internet know me as Jackie K in MO. I am 56 years old, married with 3 wonderful children and have been blessed with grandchildren also! Life is good! God has given me a road block that I am trying to work through. It's name is Myositis.
When I first found out that I had this disease, I tried reading all that I could on the Internet. At first my doctor said I had Dermatomyositis, but now that my skin isn't involved he calls it Polymyositis. Myositis is listed as a "rare" disease. I couldn't find anyone except my Rheumatologist that knew anything about the disease. As the months went by I found that I am not totally alone, but Myositis patients sure have the miles between us. So we improvise.And that is what the map of Where We Are In This World is all about.....................

Myspace Layouts at Pimp-My-Profile.com / Flower - Image Hosting

To be included on the above map click here

My Myositis blog is located at: http://myositisworld.blogspot.com/

Create your own visitor map!

My Blog

The Perfect Year Round Charity

I received the following from The Myositis Association, but it would make the perfect gift all year year round. I hope you will pass it along to your family, friends, and business associates: ...
Posted by on Fri, 14 Dec 2007 13:50:00 GMT

The Myositis Association

The Myositis Association: http://myositis.org/ This is a fantastic information and support site that anyone that has Myositis or wants to know more about our disease must visit. I ca...
Posted by on Thu, 13 Sep 2007 08:06:00 GMT

List of Doctors Around The World

Doctors That Have Treated Myositis Patients This is a listing of Doctors by State or Country that Myositis patients have recommended. I do not claim that they are the best doctors for you or that they...
Posted by on Tue, 07 Aug 2007 21:37:00 GMT

Great Myositis Disease Information Links

The Myositis Association: http://myositis.org/ A wealth of information and an active on-line community. Your donation, although not a necessity, helps research for a cure for Myo...
Posted by on Thu, 21 Jun 2007 21:30:00 GMT

Myositis Links

Intersting Myositis Websites: Kristin on MySpaceZara's HomePage Kristin Renz's Blog Laura's Page on Parenting with Chronic Illness The Myosistis Association United Kingdom Myositis Support Group ...
Posted by on Thu, 21 Jun 2007 13:33:00 GMT

Myositis Remembrence Page

We loved them, we respected them, we miss them, and we remember them................ Lois "Faye" RobertsonPerryville, MOAug. 24, 1940-Dec. 9, 2006Although she died of Lou Gehrig's disease, unti...
Posted by on Thu, 21 Jun 2007 09:02:00 GMT