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About Me

My Son Bobby has Sanfilippo syndrome it’s a rare disorder Please if anything check out the site at www.mpssociety.org you can become a member or make a one time donation your choose ps if you deside to make a donation or become a member don’t forget to say Rose sent you Bobbys Mom. Bobby is 12 years old and loves everyone. Bobby and all of the other children with mps disorders are in need of a cure, so thanks again for your time and please note this isnt a scam at all I posted More about Sanfilippo syndrome so please read all about it


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My Blog

Sailing On The Ships of Heaven - Dale Earnhardt Memorial

http://www.youtube.com/watch?v=Z3lIejRXEPo
Posted by on Thu, 21 Aug 2008 21:24:00 GMT

Blackhawk - Ships of Heaven

http://www.youtube.com/watch?v=xp05-FKbuzg
Posted by on Thu, 21 Aug 2008 20:46:00 GMT

Tribute to our Soldiers

http://www.youtube.com/watch?v=Q1qameWSx1M
Posted by on Thu, 21 Aug 2008 20:45:00 GMT

Sailing On the Ships of Heaven

http://www.youtube.com/watch?v=vWLnWS4RfPw
Posted by on Thu, 21 Aug 2008 20:41:00 GMT

Sanfilippo syndrome

MPS III is a mucopolysaccharide disease and is also known respectively as Sanfilippo syndrome. It takes its name from Dr. Sylvester Sanfilippo who was one of the doctors in the United States who descr...
Posted by on Sun, 15 Jun 2008 18:46:00 GMT