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If you are my friend you are now officially a friend of a person that is one in 100,000,000,000!! Just out of the hopital again (12/7/08) and my illness has not been named yet! Drs. say I am very rare...duh...I already knew that ;) LOL . Please keep me in your prayers as I do all of you always and forever. ..
Everything is only for a day....I am an eternal optimist and always want to save the world! I love to meet new people from all around the world and learn what I can about their cultures.
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>How To Cure ~ DETOXIFICATION INFORMATION
I was born in Indiana and moved to New Orleans when I was 14. Growing up in the "Big Easy" was awesome and I wish that New Orleans was still the same as it was back in those days. You used to be able to roam the French Quarter without fear and watch the artisits in Jackson Square for hours on end. I loved the culture mix and free easy feeling I grew up in. I moved to Florida about 8 years ago. I used to visit FL every other month or so to lay on the beach and let all my worries drift out to sea with each crashing wave. I aspired to be a beach bum and after I moved here I realized that that really wasn't me. I am a hard worker and super responsible.
I visited Brazil for a month when I was managing BRUSA International Soccer Institute back in 2000 and fell in love with the people and the beauty of the earth there. I haven't made to Carnival there yet, but I will someday. I can't wait to experience the "Mardi Gras" I grew up knowing in New Orleans in another very exotic country.
I love God, my family, my wonderful dogs and friends, meeting new people, animals, skydiving, beaching, dancing, working and life in general ;) I have two dogs that are my closest friends and we live 10 miles from the beach in North Florida. God blessed me with 5 very best girlfriends and we all share different things in common so it makes for really fun times when we get together
So here's the latest news...
12/28/08 To tires to log anything this last year....10/14/07
What you are about to read seems so insane, I can not even believe it myself as I write it. But it is the truth and there is so much more that I can not even put in here because it sounds like a best seller! lol I have tried to keep my humor through all this. But bottom line is that I am going to loose EVEYTHING very soon if I can not get some financial help.So here is my life with Sweet's Syndrome2007:
In January 2007 I became very ill and had to relinquish my job as GM for a vacation rental company. I could not afford to pick up Cobra Health Insurance and by May 2007 all of my savings were exhausted.After several trips to the ER, I was finally diagnosed with a rare illness called Sweet’s Syndrome. Sweet’s Syndrome is usually an underlying condition of something else going on inside the body, sometimes Cancer or severe Rheumatoid Arthritis, or a combination of both. The boils/Lesions/Pastuals are coming faster now only 2 to three weeks apart. They are growing in size, what started off as a quarter size boil are now larger than golf boils. They come dozens to sometimes up to 80 at a time and now have started to hit my ear and face.My Cancer cell testing came back positive, the lab results point to a rare Cancer called Waldenstrom's Macroglobulinemia. I need to have a bone marrow biopsy to confirm the type of cancer. The Moffitt Cancer Center in Tampa, FL is trying to get me approved for treatment. However, I do not have any funds to travel the 9 hours or pay for a place to stay while they try to help me save my life.I have also been diagnosed with Epstein-Barr Virus and have an infiltrate in my right lung that is rapidly growing. I have exhausted all efforts where I live to get treatment and am currently without a primary care physician. I do not qualify for Medicaid right now and even though the one doctor I have, Dr. Kovaleski – a dermatologist, is working diligently to get me into Moffitt Cancer Center to an Oncologist, Pulmonologist and Rheumatologist since June 28, 2007 after my biopsy results came in I have been unable to get help because I have no insurance or cash to pay for treatment, please help me.On July 9, 2007, as if it could not get any worse, I sliced my right hand from pinky finger to pointer finger. I severed all the tendons in my right hand (which is my dominate hand.) I have undergone surgery to reattach the tendons in my hand however have not been able to afford physical therapy and have only limited use of the hand. The surgeon said they may have to go back in to fix the tendons but I must first pay the $8,800 bill I owe for the initial surgery and they can not see me for follow up unless I can pay the bill! Vocational Rehab has deemed me un-rehabilitatable so they won’t assist.It’s scary how life can change so quickly I have always worked and was even nominated for International Who’s Who in business in 2000. I used to be very active and worked very hard; I was pretty smart and could accomplish any task that was given to me. I was very active in volunteer work, I loved to skydive and swim,6/28/07
Well....I got the biopsy results back and once again the Leukemia is coming up :( I now have to schedule all these other tests and it's gettin very hard because of the lack of insurance and all the run-around from drs. I applied to Mayo Clinic in Jacksonville so I am hoping I can just go there and all the testing can be done at one facility and then a treatment plan emerge before I freaking die while they are trying to figure it out. New official diagnsis is:
1. Sweet's Syndrome - recurrent and acute. (by-product of cancer)
2. Reumatoid Arthritis - Early stages
3. Leukytosis possible Leukemia in bones - More diagnostic needed reffered to an Oncologist.
4. Colon Cancer - More diagnostic needed.
So much more testing and maybe they will catch and destroy before it's too late! Please keep my drs and myself in your prayers.
5/28/07
I thought I had contracted CA-MRSA (see the info and links to the left) back in March. Much to my relief I did not. I was recently diagnosed with a rare illness called Sweet's Syndrome. The drs still do not know for certain what is happening to me, maybe lukemia or lupus. So I just keep on keeping on.
5/30/07
HAPPY NOTE.... I recently had a visit from my good friend Carla Boullion from New Orleans and her peeps. Carla is one of New Orleans most knowledgable historians and gives daily tours of the Garden District and French Quarter. She is also an artist, you can check her out Carla's Website
Check out my new videos and pics from the beach! The unearthing of a child or two...lol