HI,
My name is cathy. I am 42 years old. I have had symptoms of systemic
lupus since 1980;s. I was finally diagnosed in 1996. After 3
miscarriages i did finally have 2 children .I did not know of the
lupus then nor did my dr;s.In 1994 I started having alot of fevers,
joint pain,rashes, raynuads, hives. so i went to dr . they treated me
just with ibuprofen & sent me on my way. Finally in 1996 i got someone
to take me seriously & i was diagnosed with lupus. In 1999 my lupus
was active so I started on plaquenil, pred & immuran . methotrexate
that year. In july 2000 i started having odd neurological problems. i
developed optic neuritis in my left eye, severe spastic muscles in my
arms & legs .having difficulty walking nor standing. Up till this
point i had been exercising & walking 1 hr a day. Once that started my
life hasn;t been the same since.In the years 2001 I tried to find out
what was causing these problems but alot of unknowns & not very
knowledgable dr;s.After that I did not go to dr;s till 2003.In 2003 I
got a new primary & things started to go different. He got me into see
a new rheumatologist, neurologist & finally now in 2004 a
neuro-opthamologist.The neuro-opthamologist discovered that i have
bilateral optic neuritis, spasticity, cns lupus/MS , vasculitis, &
antiphospholid syndrome.So finally after all this time a name to the
weird odd things...since 2004 I have been on prednisone at a level of
60mg, baclofen 60mg,ultracet 2 pills every 4 hours for pain,.. (they
don;t really seem to do much personally). the pain from the spastic
muscles seems unreachable to me.This past year the muscles have
started to atrophy and my bad leg the rt leg i can no longer move at
all.the spastic muscles causes the inability to move.My walking is
very bad I walk short distances with a cane but anythingelse is a
wheelchair deal. nt too much fun since i just turned 39 this wk. My
latest problems as of past 2 weeks has been another bout of optic
neuritis. woke up one night to being blid in my rt eye again. so the
blurry and double vision have been greatly worsened since that time.
Last dr appt one of those humbling times. You know you ask the
question So will things ever change or get better?
Dr replies in a sad look.... No i;m sorry,. it won;t ever get better...
I was sad for bit but what can you do but look fwd and keep on going.
well thanks for those that read this and letting me share.hugs, cathym
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Click to joinMyspace Contact TablesI have added this to my page. My best friend my dog Sparky died on feb 3, 2007.... this is a dedication to him.Rainbow Bridge Poem
Just this side of heaven is a place called Rainbow Bridge.When an animal dies that has been especially close to someone here, that pet goes to Rainbow Bridge. There are meadows and hills for all of our special friends so they can run and play together. There is plenty of food, water and sunshine, and our friends are warm and comfortable. All the animals who had been ill and old are restored to health and vigor. Those who were hurt or maimed are made whole and strong again, just as we remember them in our dreams of days and times gone by. The animals are happy and content, except for one small thing; they each miss someone very special to them, who had to be left behind.They all run and play together, but the day comes when one suddenly stops and looks into the distance. His bright eyes are intent. His eager body quivers. Suddenly he begins to run from the group, flying over the green grass, his legs carrying him faster and faster.You have been spotted, and when you and your special friend finally meet, you cling together in joyous reunion, never to be parted again. The happy kisses rain upon your face; your hands again caress the beloved head, and you look once more into the trusting eyes of your pet, so long gone from your life but never absent from your heart.Then you cross Rainbow Bridge together...~ Author Unknown
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