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WHY IS CHD EDUCATION, AWARENESS, AND RESEARCH IMPORTANT?
CHD has been thought of as a disease of childhood, but it has become an important disease of adulthood as well. The increasing survival rate of children born with CHD and advanced treatments have increased the number of those living into adulthood. We need to increase public awareness for congenital heart disease in order to be able to better care for the increasing number of adults with congenital heart disease (ACHD).PARENTS SHOULD BE ALERT TO THE FOLLOWING SYMPTOMS IN INFANCY:
Tires easily (especially during feeding),
Sweating around the head (especially during feeding),
Fast breathing when at rest or sleeping,
Pale or bluish skin color (especially when crying or agitated; during diaper changing, bathing),
Poor weight gain,
Sleeps a lot - not playful or curious for any length of time,
Puffy face, hands, and/or feet,
Often irritable, difficult to consoleSOME CHILDREN MAY NOT HAVE SYMPTOMS UNTIL LATER IN CHILDHOOD. PARENTS SHOULD BE ALERT TO THE FOLLOWING SYMTOMS:Gets out of breath during play,
Difficulty keeping up with playmates,
Tires easily, sleeps a lot,
Change in color during active play, looks pale or has a bluish tint around mouth/nose,
Frequent colds and respiratory illnesses,
Slow growth and weight gain, poor appetite,
Complains of chest pain/heart poundingAbout 40 CHD's have been recognized...there are no cures, only treatments and surgical repairs. For more information: http://www.congenitalheartdefects.com/typesofCHD.htmlLEARN MORE ABOUT CHD, PLEASE WATCH OUR VIDEO! (DON'T FORGET TO PAUSE PROFILE SONG SO THAT YOU CAN HEAR VIDEO MUSIC)
Make video montages at www.OneTrueMedia.comTO LEARN MORE ABOUT 22q11 DELETION, PLEASE WATCH THIS VIDEO (Don't forget to pause music player below)
Photo and video editing at www.OneTrueMedia.com
