When I was 18 months old my mommy and Daddy got the devastating news that I had Tay-Sach's disease and my beautiful life would be cut way to short. God sent me here to change the world by touching people's heart wherever I go. I teach people unconditional love and to never take things for granted especially their healthy children. I have taught my parents, patience, how precious life is, and how to love deeper than they ever thought possible along with many other values. My goal is to encourage my parents to help teach the world about Tay-Sach's disease and the importance of genetic screening to help save children from being born like me or for those that are so maybe the disease would be caught early enough to under go stem cell treatments so they might have hope for survival. I am 5 years and 1 month old. My parents are so proud of the strength that I have shown. My mom says I am her Hero and she hopes that one day she will have my strength. I think she already does because she fights for me when no one else will to get the things that I need. Anyway remember that Tay-Sach's disease is not just a Jewish disease anymore. Anyone can be a carrier!!!!
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