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About Me

I am an old dude who was diagnosed with ALS in 2004 after stumbling around to doctors' offices for three years trying to find out why I was stumbling. Well now I know and I am making it my goal to let as many folks know about ALS as I can, and to help find a diagnostic test (can you believe there is none?) some good therapies (can you believe there is only one drug approved for ALS?) and to support research to find the elusive cause and cure.I was born in the Panama Canal Zone and spent my first 40 years there working for various federal agencies, the last being the Panama Canal Commission.I worked in Washington, DC, for the US Army Corps of Engineers as Chief of the Dredging Division where I had oversight for all Federal dredging projects in the nation. I retired in 1989 and did free lance consulting on dredging issues, primarily environmental aspects of dredging. I edited the second and third editions of the book, "Dredging for Development," which was specifically directed to port development in developing countries.I am President Emeritus of the Panama Canal Museum in Seminole, Florida. The Panama Canal Museum, the only such institution in the United States dedicated exclusively to preserving the proud history of the American Era of Panama's history. It is my other passion besides promoting the awareness of Lou Gehrig's disease. Myspace Graphics
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My Interests

I'd like to meet:

Bill Gates, Oprah Winfrey or any other celebrity and philanthropist who wants to find a cure for ALS. It is too late for me to want to meet the sweeties like Jennifer Lopez or Penelope Cruz, but I would not kick them off my wheelchair.

My Blog

Ruminations of an Agnostic

The combination of advancing age and a terminal illness does tend to bring one's thought to things spiritual.  So it came as no surprise to this old guy that my mind turned towards some spiritual...
Posted by on Sat, 23 Feb 2008 13:28:00 GMT

ALS Registry Bill on HOLD

Lou Gehrig's Patients Get Their Bill Blocked January 7, 2008 - by Donny Shaw Leon Peek writes: The ALS Registry Act, S. 1382, has been frozen by Senate trickery. As a person coping with ALS...
Posted by on Sat, 12 Jan 2008 11:51:00 GMT

National ALS Registry, where are we?

..:namespace prefix = o ns = "urn:schemas-microsoft-com:office:office" />  Thank God for Congressman Eliot Engler of New York for introducing HR2295 as new legislation into this 110th sessio...
Posted by on Wed, 05 Sep 2007 07:54:00 GMT

Lou Gehrigs disease takes guts

My bride and I were petrified when I was diagnosed with ALS or Lou Gehrig's disease.  Why, you ask?  Well simply put we were told the average life span was from 3 to 5 years after diagnosis....
Posted by on Mon, 20 Aug 2007 10:04:00 GMT

New ALS advocacy website and discussion group.

I am part of a team that has started a new ALS advocacy site with the strange name of: www.ALSadvocacy.com.  It serves as a portal to a new Yahoo Group to promote advocacy in the broadest sense o...
Posted by on Tue, 24 Jul 2007 17:59:00 GMT

ALS National Registry

I found it absolutely appalling that over 100 years since amyotrophic lateral sclerosis, ALS, also know an Lou Gehrig's Disease, and 68 years after Lou's death from ALS that there is no national regis...
Posted by on Thu, 19 Jul 2007 14:27:00 GMT

Depression

Depression is something that we often don't want to talk about as ALS patients.  In fact, I was surprised to read some report that indicated that people with ALS (PALS) were a strangely happy wel...
Posted by on Wed, 18 Jul 2007 16:42:00 GMT

ALS Awareness Month, Remember Lou Gehrig

It's me again.  May is ALS (Lou Gehrig's Disease) Month.  Over 700 (including 120 people with ALS) are convening in Washington DC this week.  On Wednesday they will visit literally...
Posted by on Mon, 14 May 2007 19:31:00 GMT

What if.....

You know with this Lou Gehrig's disease killing us off as fast as new folks are diagnosed, it seems we cannot get a living community in the US of much over 30,000 at any one time.  That is one re...
Posted by on Mon, 16 Apr 2007 15:00:00 GMT

Lou Gehrig's Disease

I have been a regular blogger on the ALS Association Internet virtual community since it started.  The purpose of that community is to serve as a meeting place to raise awareness about Lou Gehrig...
Posted by on Sat, 14 Apr 2007 21:52:00 GMT