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About Me


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My name is Jessica or just Jess for short. I am a sophomore in high school in Lincoln, NE. I was diagnosed with Systemic Lupus in July of 2006. Although I was just recently diagnosed, Lupus is not a new face to me. I have watched my mom suffer from this terrible disease for almost 12 years now. My mother is truly my hero, my inspiration, and the one that motivates me to get out of bed every morning (truthfully I usually get up in the middle of the afternoon ;])
In just the short time I have had Lupus I have gained knowledge and gained so much emotionally. This disease has forced me to grow up very quickly and begin to look at life from a different perspective. I am so appreciative to life, not only for the "good days" but for the "bad days" too. I've obtained emotional strength and really learned what truly is important in life, for that I have Lupus to thank.
When I was first diagnosed the support I immediately found through myspace was absolutely mind blowing. I had the privilege of meeting and hearing the stories of so many strong, brave, and blessed people that knew exactly what I was going through. The community of "Lupies" I have surrounded myself with on myspace have been an amazing support system for me. I am extremely thankful for each and every "Lupie" that I have met.
I have a personal site too, feel free to add it as well as this one.
[ www.myspace.com/jessiefromdahoodyohomie ]

jess
The Lupus Foundation of America (LFA) estimates that 1.5 million Americans have a form of lupus, but the actual number may be higher. More than 90 percent of people with lupus are women. Symptoms and diagnosis occur most often when women are in their child-bearing years, between the ages of 15 and 45.In the United States, lupus is more common in people of color - African Americans, Hispanics, Asians, and Native Americans - than in the Caucasian population.
Lupus affects one out of every 185 people; 90 percent of whom are women. Lupus is more prevelent in African-Americans, Latinos, Native Americans and Asian-Americans.
Although Lupus ranges from mild to life-threatening and 20,000 Americans die with Lupus each year; the majority of cases can be controlled with proper treatment. · Sunlight, infection, injury, surgery, stress or exhaustion can trigger "flares" in Lupus (a more active state of the disease).
Funding for this disease is not as prominent as it is for cancer, heart attacks, strokes, Diabetes and AIDS.
However, Lupus is more prevalent than AIDS, Sickle Cell Anemia, Cerebral Palsy,Muscular Dystrophy, Multiple Sclerosis and Cystic Fibrosis COMBINED.


I am the Face of Lupus

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My Interests

I'd like to meet:

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My Blog

Flare=too much time to think.

So it is now 4:49am. I have been laying in bed for about five hours now trying to fall asleep. It's been one of those nights where just cannot relax and escape my thoughts. I keep find myself asking, ...
Posted by on Mon, 06 Oct 2008 09:49:00 GMT

paper i wrote for english-"my mom"

.English9D        &n bsp;         &n bsp;         &n bsp;  &nbs...
Posted by on Mon, 26 Mar 2007 17:39:00 GMT

Responses to Dr. Phil's belittlement of Lupus

When I was watching the Dr. Phil show with my mom on Monday March 5 I was absolutely appauled by the comments Dr. Phil made about Lupus and the absolute falsehood of what he was saying.  I immied...
Posted by on Tue, 06 Mar 2007 21:48:00 GMT

when you see me

WHEN YOU SEE ME by Mary Hastings written May 2003 When you see me on a "good day" I may look as if nothing's wrong, But I, myself, am very aware That the energy won't last long. You may think that ...
Posted by on Tue, 30 Jan 2007 16:23:00 GMT

The Spoon Theory

The Spoon Theory Current mood: exhausted Category: Life ...
Posted by on Sat, 27 Jan 2007 17:02:00 GMT

System Lupus Erythematosus

Definition of System Lupus Erythematosus Lupus is a chronic inflammatory disease that can affect various parts of the body, especially the skin, joints, blood, and kidneys. The body's immune system ...
Posted by on Sat, 27 Jan 2007 17:02:00 GMT