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Cystic Fibrosis

About Me

CYSTIC FIBROSIS
cys·tic fi·bro·sis

cys·tic fi·bro·sis [ sìstik fi brossiss ]

Cystic Fibrosis (CF) is one of the most common genetic (inherited) diseases in America. It is also one of the most serious. It is a whole body disease but it mainly affects the lungs and the digestive systems in the body, making it hard for us CFers to breathe and sometimes have problems digesting food. It is a disease that currently has no cure. At first, CF was considered a childhood disease. The median survival age was 8 years. Today, it is 36½ years

Ways to help: .. Volunteer for CF Research Fundraise Spread awareness and facts about CF
'Cystic Fibrosis is not our friend ...'

My Blog

Confessions Of A CF Husband Blog

A CF family that covets your prayers. http://cfhusband.blogspot.com/
Posted by on Wed, 11 Jun 2008 15:10:00 GMT

Drug Development Pipeline

http://www.cff.org/research/DrugDevelopmentPipeline/  
Posted by on Sat, 09 Jun 2007 18:30:00 GMT

A Blog Excerpt

The following is a speech taken from a blog: Breathing Deeply: My Life With Cystic Fibrosis Since tonight is Spring Solstice, I'd like to share with you a poignant quote by C.S. Lewis, one of my favo...
Posted by on Mon, 23 Apr 2007 19:13:00 GMT

Expanding the Horizon of Hope: 50 Years of Progress Movie

Length: 60 minutes.This film highlights the progress that has been made in CF research and care over the past 50 years, as well as the challenges that still lie ahead. It pays ...
Posted by on Tue, 20 Mar 2007 20:26:00 GMT

CF Gene Interactive

Click here to go to the CF gene interactive
Posted by on Mon, 19 Mar 2007 17:50:00 GMT

Living With CF

Article:Living With Cystic Fibrosis
Posted by on Fri, 16 Mar 2007 04:03:00 GMT

CF Site Poll

CF Site PollWhat brings you here?I have CF.A family member has/had CF.I know/knew someone with CF.I'm a healthcare worker.I'm just learning about CF.I don't know how I got here. View Results
Posted by on Wed, 14 Mar 2007 20:18:00 GMT

Lung Infections ...

Our Lungs:   They can get infections:   I'ts a downward spiral:   We need to get the right mix of meds to kick it's behind!   http://cfcenter.stanford.edu/BasicsOfCF.html ...
Posted by on Wed, 07 Mar 2007 18:32:00 GMT