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About Me



Check out more Myspace layouts at pYzam .

~Prayers for Sierra~ You can click the link below to go to Sierra's Caring Bridge page.http//www.caringbridge.org/visit/sierraayersmutchler"Li ght a candle for someoneLight a Candle
http://www.cystinosis.org

My Interests

I'd like to meet:

Cystinosis 12 and under
cystinosisteen
Cystinosis adult

My Blog

Must read and remember- $20.00 Thanks Georgette

$20.00Sometimes we just need to bereminded!A well-known speakerstarted off his seminar by:holding up a $20.00bill. In the room of 200, he asked,"Who would like this$20 bill?"Hands started going up.He ...
Posted by on Wed, 23 Jan 2008 11:41:00 GMT

4 candles


Posted by on Mon, 21 Jan 2008 11:47:00 GMT

A way to say Thanks to our military.

Just a thought during our busy holiday season to remember our young men and women who have served this country and risked their lives for our freedom. Let them know you care and that you are thinking ...
Posted by on Thu, 08 Nov 2007 11:17:00 GMT

Words from Dr. Gahl on THE eye drops

Dear Cystinosis Community, I asked Dr. Bill Gahl, chair of the CRN Scientific Review Board, to comment on the issue of when to begin administration of the cysteamine eye drops. Below is his resp...
Posted by on Thu, 25 Jan 2007 13:03:00 GMT