10 tiny things to answer could change someones outlook on dystonia |
I am so tired but best do this before i forget again! it has been my first full week of "back to work" and slowly i am adjusting though my body is fighting every step of the way. But I am slowly adjus...
Posted by on Fri, 17 Oct 2008 04:50:00 GMT |
time lost and time saved |
so it's a bit over half of my FMLA to wait as my body heals from a machine placed in my abdomen and a tube and needle in my spine. My mind races with projects and to-do's I make huge lists everyday an...
Posted by on Fri, 29 Aug 2008 13:55:00 GMT |
insomnia |
with a few days of insurance withholding a heavy medication i have been on over a year- now taking it seems to make my body a bit wacky. tonight i am not tired but my body is sleepy. so since i seem t...
Posted by on Fri, 22 Aug 2008 17:39:00 GMT |
hey read this! |
IThe I Wanna Be A Robot benefit for medical bills and to promote dystonia awareness- raise money for the Dystonia Medical Research Foundation- AND promote and enjoy local music (Dallas and OKC) ...
Posted by on Mon, 04 Aug 2008 15:16:00 GMT |
IKEA and finally OUT OF THE HOUSE! |
August 3rd- 19 days after implant
Today was the first real day out of the house. And it is day 4 of the heat being so bad outside that even with the AC cranked I have to sleep in our old bedroom on a ...
Posted by on Mon, 04 Aug 2008 15:14:00 GMT |
outbreak on my left arm-low immune system |
A dark cloud has slowly been going over my head. I usually can tell when dystonia will be bad- I adjust my life and cancel doing anything and I just do everything I can for relief. But this is differ...
Posted by on Thu, 26 Jun 2008 14:20:00 GMT |
A thought on moments |
There's a lot to do before the benefit and I didn't know how much goes into all of it! But I can't even begin to explain how this- just the planning has added a positive chapter to my life. People I ...
Posted by on Sun, 22 Jun 2008 19:02:00 GMT |
the date is set |
The baclofen Pump surgery is officially set... Friday 7am July 18th. I was thinking it would be sooner and with each passing day after the successful trial surgery (where they inject baclofen into my ...
Posted by on Fri, 13 Jun 2008 04:14:00 GMT |
it’s late so i cheat |
i shouldn't be up but this sickness flue whatever has me unable to sleep so i get up- sleep-get up again. Got on the computer to make myself sleepy and now i am too tired to post. but i haven't in awh...
Posted by on Sat, 17 May 2008 23:55:00 GMT |
one day till surgery and i am ready |
ahhhhh dystonia. so now i have infetigo (a kids version of a staff infection). yes i do take showers- but when your immune system is low the staph and strep that lives on your skin can get in it. it's...
Posted by on Thu, 17 Apr 2008 15:06:00 GMT |
