Uk Lupus Support profile picture

Uk Lupus Support

I am here for Friends

About Me

I have made this site to set up a support group for Lupus sufferers and their families in the UK. I was diagnosed with SLE in 2005 after becoming very ill quite quickly. I am 23 years old,from Sunderland and im currently a lazy student. Lupus doesnt rule my life and never will...im a fighter!! I want to spread the word about Lupus here in the UK and unite those who suffer with me. My life has a different course now and im proud to say my family and friends have given me fantastic support and stood by me through the rough times. I will continue to raise awareness and support all those that suffer from Lupus!

My Interests

I'd like to meet:

Lupus: an immune system disorderSOME 50,000 may have lupus in the UK; 90 per cent of sufferers are female, mainly between the ages of 15 and 55. Lupus is a chronic (long-lasting) autoimmune disease in which the immune system, for unknown reasons, becomes hyperactive and attacks normal tissue. This attack results in inflammation and brings about symptoms. Worldwide, lupus is more prevalent than leukaemia, muscular dystrophy and multiple sclerosis. It can sometimes mimic the symptoms of MS. Lupus is difficult to diagnose because its symptoms are so varied and can appear like other diseases. The condition can be overlooked, sometimes for years, unless the GP or consultant is alert to the possibility of lupus. It can be mild, disabling or can even be fatal. There are two main forms of lupus. One, discoid lupus, affects only the skin, whereas the other, systemic lupus, involves the joints and may involve the internal organs as well. Joint and muscle aches and pains and extreme fatigue and weakness are the two most common groups of symptoms. The most prevalent skin problem in lupus is the butterfly rash. This is a red rash, sometimes no more than a mild blush, that occurs across the bridge of the nose and on the cheeks resulting in a distinctive butterfly-like appearance. As a result the butterfly (pictured) has become a symbol of lupus charities world-wide. The exact cause is unknown, but it is likely to be a combination of factors. A person's genetic make-up and exposure to certain trigger factors may provide the right environment in which lupus can develop. The term "lupus" was derived from the Latin word for wolf. The majority of people living with lupus today can expect to live a normal life span. About 20 or so years ago it was a different matter, many more people died from lupus. This was due to the fact that it was only diagnosed when it was very severe and treatments weren't as effective. There are many possible manifestations of lupus. Below are some of the most common. A lupus sufferer may have four or five symptoms; permanent rash over cheeks; extreme fatigue and weakness; kidney problems; rashes from sunlight/UV light; poor blood circulation; depression; hair loss; miscarriages and haematology disorders including anaemia

My Blog

What ’I’m fine’ really means!!

The analysis of "I'm fine" is extremely intricate. I say it b/c that's what people expect to hear&well and let's face it I "look" normal. Also, I mean most people just say "how are you?" to be polite ...
Posted by on Sun, 16 Sep 2007 14:41:00 GMT

Tips on coping with Lupus

Steps to coping with lupus- become well-educated about lupus- try to prepare for the up-and-down nature of the disease. plan alternate activities, alternate schedules or time for extra rest.- be open...
Posted by on Fri, 02 Mar 2007 07:47:00 GMT

"Toxic Fatigue of Lupus"

THE TOXIC FATIGUE OF LUPUSBY GLORIA ROSENTHALAlmost all lupus patients have heard the phrase "But you don't look sick" and we cringe inside, knowing the speaker's words do not convey the speaker's tru...
Posted by on Tue, 13 Feb 2007 03:46:00 GMT

Living with Chronic Illness

Living with Chronic Illnessby Elizabeth HoltzmanChronic illness does not match the common pattern of how illness unfolds. You get sick, go to the doctor and get some medicine and wait to get better. I...
Posted by on Tue, 06 Feb 2007 15:09:00 GMT

Lupus FAQs

What is lupus?Lupus is a chronic (long-lasting) autoimmune disease where the immune system, for unknown reasons, becomes hyperactive & attacks normal tissue. This attack results in inflammation &...
Posted by on Sat, 03 Feb 2007 07:39:00 GMT

Meds!!

There is at present no cure for lupus but careful monitoring of the disease and a treatment programme with medication adjusted as appropriate enables the condition to be controlled, most patients bein...
Posted by on Sat, 02 Dec 2006 08:08:00 GMT

What Causes Lupus?

There is no one cause of SLE. It seems to be due to a combination of factors, including environmental factors (such as previous infections), the balance of hormones in the body, and genetic factors. L...
Posted by on Sun, 12 Nov 2006 13:28:00 GMT

Common Symptoms of Lupus

Lupus can mimic many different diseases. However, it usually starts with joint pains - especially in the small joints of the hands and feet - which may flit from one set of joints to the other quite q...
Posted by on Sun, 12 Nov 2006 13:09:00 GMT