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Hi! I'm Victoria. By making this, I'm hoping that it will increase awareness and hope to "The Great Immitator" called Lyme Disease. Some goals that I have for making this page is to offer support and hope to those who need it. Feel free to post your story of what you are going through or your success stories. I know that it is easy to feel alone with this disease. We don't look sick, so people overestimate how we feel. Our familiy and friends often abandon us when we need them the most. You are not alone. I promise. You can always talk or vent to me. Remember: there is always hope... and Lyme Disease will not win the battle. You will win. :)To start off, here is some important information regarding Lyme Disease:Lyme Disease is a seriously complex infectious disease characterized by a skin rash, joint inflammation, and flu-like symptoms, caused by the bacterium Borrelia burgdorferi transmitted by the bite of an infected insect (not just ticks), although symptoms vary and most people never get a rash. It also can be transmitted congenitally, sexually, and through bodily fluids.The ELISA, or titer, and the Western Blot are the only tests to check for Lyme but can be useless because they are known to give false negetive results. So, the only real way to know if you have Lyme Disease or any other tick-bourne illness, is to see a LLMD (Lyme Literate Medical Doctor). When a person has Lyme, it is very important to see a knowledgable doctor. Most doctors do not understand Lyme.Below is a Lyme symptom list. You can have any combination of symptoms.Unexplained fevers, sweats, chills, or flushing Unexplained weight change--loss or gain Fatigue, tiredness, poor stamina Unexplained hair loss Swollen glands Sore throat Testicular pain/pelvic pain Unexplained menstrual irregularity Unexplained milk production: breast pain Irritable bladder or bladder dysfunction Sexual dysfunction or loss of libido Upset stomach Change in bowel function-constipation, diarrhea Chest pain or rib soreness Shortness of breath, cough Heart palpitations, pulse skips, heart block Any history of a heart murmur or valve prolapse? Joint pain or swelling Stiffness of the joints, neck, or back Muscle pain or cramps Twitching of the face or other muscles Headache Neck creeks and cracks, neck stiffness, neck pain Tingling, numbness, burning or stabbing sensations, shooting pains Facial paralysis (Bell's Palsy) Eyes/Vision: double, blurry, increased floaters, light sensitivity Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity lncreased motion sickness, vertigo, poor balance Lightheadedness, wooziness Tremor Confusion, difficulty in thinking Difficulty with concentration, reading Forgetfulness, poor short term memory Disorientation: getting lost, going to wrong places Difficulty with speech or writing Mood swings, irritability, depression Disturbed sleep-too much, too little, early awakening Exaggerated symptoms or worse hangover from alcoholThere are over 100 different symptoms of Lyme Disease, so the ones that I listed are only a few of the many symptoms.Besides Lyme disease, ticks can transmit several co-infections including Babesiosis, Ehrlichiosis (HME & HGE), Bartonella, Babesia and Mycoplasma. It is estimated that 60% of people who have Lyme are co-infected. It is very important to be tested for these by a Lyme reputable lab such as IgeneX in Palo Alto, CA.
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It is very normal to feel as though you are going through this alone. It saddens me because you are NOT alone but since people treat you like you're making it up, you don't always like to tell people sometimes because it's like you just don't want to hear another person in your life tell you that nothing is wrong with you, even though you desperately want and need the support. It's a horrible feeling to have when you know that there is something wrong with you and feel as though nobody understands. It's amazing the things people take for granted. I would love to have all of my non-believers go through a week in my shoes. Maybe then they will understand better what I'm going through a little more. Trust me you are not alone in this, I promise you. You have to maintain strength to keep having hope, even when it feels like there isn't any. There is always hope. Always. Without hope then what kind of life will you be living? Would you feel happy? Would you feel satisfied? Hope is so important. It's taken me awhile before I was able to be in that mindset, but I feel mentally better. I believe that I can and will beat this disease and that it will not ruin my life. I won't let it. You are always more than welcome to vent to me. I would love to help you in whatever ways I can.