Nervygirl profile picture

Nervygirl

I am here for Friends and Networking

About Me

I'm a former paralegal who's now dedicated to seeing Peripheral Neuropathy and Charcot-Marie-Tooth Syndrome cured. My cause is a personal one. My family suffers from devastating pain and loss of mobility caused by the above afflictions.In fact, my mother recently passed from complications from PN & CMT. She had become bedridden from the muscular atrophy, and these afflictions had compromised her respiratory and cardio system.In the past, I have helped promote authors and artists. I've also worked with journalists and writers. Currently, I'm a member of the Entertainment Publicists Professional Society [EPPS - www.Eppsonline.org] that is affiliated with UCLA Extension, and, Book Publicists Of Southern California[www.bookpublicists.org].However, now, I am focusing all my energy on developing fundraising projects and programs for the above causes.In addition, I'm a member of: The Neuropathy Association [www.neuropathy.org]; UCLA's Neuropathy Support Group [[email protected]; www.numbtoes.org]; www.change.org [my profile is: "Lisa G. from Beverly Hills"]; a "friend" of MDA, www.mdausa.org, and, I use www.goodsearch.com, the click and donate search engine on behalf of neuropathy. I also advocate the use of the hereditary neuropathy website, www.hnf-cure.org; www.cmt.org; and, www.neurologychannel.com. I can also be found on IVillage.com at www.groups.ivillage.com/neuropathy

My Interests

I'd like to meet:

I welcome everyone in the arts and entertainment business. Especially, anyone who may have worked at 20th Century Fox during the late 1940's through the early 1990's and may have known my uncle, Orven Schanzer, or the projects he worked on during his TV and film editing career. I also welcome everyone who advocates social change, improved health care, and research funding. I also encourage stem cell advocates to write me. I was very impressed meeting the doctor Sherry Lansing was working with in 2005.

My Blog

MAKE THAT DIFFERENCE FOR NATIONAL NEUROPATHY WEEK MAY 11-16

Hi everyone,Whether you or your friends attend health fairs;Whether you or your friends can help write letters to politicians, schools, people in the media;Whether you can get out or your friends can ...
Posted by on Sat, 02 May 2009 12:29:00 GMT

NEW FACE OF CHARCOT-MARIE-TOOTH AWARENESS

Actress, Susan Lucci, best known for her role as Erica Kane on the long-running daytime soap opera, ALL MY CHILDREN, is going public with her support to raise awareness for the hereditary neuropathy d...
Posted by on Sat, 31 Jan 2009 04:35:00 GMT

NEW BREAKTHROUGH NEUROPATHY NEWS

CR 87 [HAYASHI] BECOMES LAW [copied from February's Peripheral Neuropathy News-L.A. Newsletter]The Neuropathy Action Foundation has been hard at work in Sacramento, collaborating with legislators and ...
Posted by on Sat, 31 Jan 2009 04:09:00 GMT

Three New Neuropathy Outlets

Hi everyone!Stumbled upon a website: www.thepetitionsite.com while reading a WOMAN'S WORLD magazine.  The article says, they are the place where "your opinion counts!"  Well, while on the above site, ...
Posted by on Wed, 21 Jan 2009 21:35:00 GMT

NEW CURE NEUROPATHY T-SHIRT CREATED

Hi everyone, Here's hoping I copied this URL correctly!  Here's the first-ever CURE NEUROPATHY T-SHIRT created on www.zazzle.com http://rlv.zcache.com/cure_neuropathy_t_shirt-p2354049297900 41242...
Posted by on Mon, 08 Dec 2008 08:46:00 GMT

Wanna Make A Difference? Heres How!

Top 5 Ways You Can: GET NERVY! Join the FIGHT AGAINST NEUROPATHY; and, MAKE A DIFFERENCE. 1.  Use the search engine, www.goodsearch.com on behalf of neuropathy.  The advertisers donate "...
Posted by on Sat, 22 Nov 2008 06:29:00 GMT

New Neuropathy News Fall 2008

Hi everyone, What an informative several months it has been.  Always new information coming my way and most of the time, TMI way too fast. Here's what's been happening and what I've learned. My ...
Posted by on Mon, 10 Nov 2008 23:26:00 GMT

Holy Courageous Catwoman, Kudos For CMT Reveal!

Hi everyone, Oh what a joy to be able to blog again!  I get no reception where I am... With that said, here's hoping you've recently read in the: National Enquirer; People; New York Times; TV Gu...
Posted by on Thu, 07 Aug 2008 00:17:00 GMT

Cymbalta Neuropathy News

Fresh from the Peripheral Neuropathy News-L.A. newsletter: FDA issues warning letter over Cymbalta's physician promo 10-3-07 The FDA has issued ELI LILLY a warning letter over effectiveness claims the...
Posted by on Sat, 23 Feb 2008 23:40:00 GMT

Breast Cancer Treatment Drugs That May Cause Neuropathy

Hi Everyone, I've been corresponding with NATIONAL WOMEN'S HEALTH NETWORK, since reading about Elizabeth Edwards's neuropathy two weeks ago. NWHN has very generously provided me with the following in...
Posted by on Fri, 10 Aug 2007 22:43:00 GMT