Angela profile picture

Angela

I am here for Friends and Networking

About Me

It started in 2002. I had a brain bleed at work. It wasn't covered by workman's comp because it was a pre-existing condition and it was determined to have happened on my lunch break (even though doctors said it was bleeding for hours). It was so severe there was no chance of survival. I had what is called an AVM, arteriovenous malformation, in my head that bled while I was driving. An AVM is basically an aneurysm. I had what is sometimes called an AVM stroke. It is not known if it caused the car accident or was made to bleed because of it (I personally believe hitting my head on my desk earlier made it bleed, and then driving, it caused the accident.). I was in a coma for a month but still remember what I heard. When I came out I couldn't talk or move (Locked-In Syndrome). In 2004 with the advance of technology, doctors at Stanford were able to remove from my brain the thing that bled, the AVM, and since then I am learning to move my right again. I was institutionalized from December 2002 - March 2006. I was admitted to 5 hospitals, 2 nursing homes, and one sub-acute hospital. Nobody ever thought I would have any recovery like this. I guess everyone expected me to have mental damage. I didn't. Just motor. And I'm over-coming that.
Clicking the link to the left will take you to my group on MySpace. There's more on WeAreTBI.org . Since so many people look at this, I would like to put some important information on here. And it’s free (check out the blog). I have been making a lot of progress mainly because of what I know (I used to do early intervention), and because of what I have learned since this happened. I will put different topics in the blog area. If you have a question or want a topic addressed, please message me. You can either on here, or if you’re not a member, [email protected]. Others probably have the same questions. There is no reason a person should have to learn the hard way if somebody else knows the answer. I don’t have answers for everything, but I will try. Also, if you see a mistake, let me know. I don’t want to give the wrong information.

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My Interests

I'd like to meet:

Plain MySpace Layouts by Iron Spider
I was like the person in the book or the movie, The Diving Bell and the Butterfly, which you can rent. This is from the movie. It's based on a true story. The guy was the editor of Elle, and when this happened he wrote a book, blinking it all out.

It's taken a while, but I can talk now. And move! My left side moves more than my right. Which is why I got a diagnosis of "recovered quadriplegia". I had to blink everything out. Usually it all had to be summed up in one word. Some didn't want to take the time. No wonder my first word was "no". I wasn't being negative; just saying what I wanted.

My Blog

Learn From Mistakes (Safety)

Safety first.  Even I get lax.  My right side is weak.  VERY weak.  I forgot to put my armrest down (right) and had earlier loosened my seatbelt.  Of course I fell to the right.  The seatbelt kept me ...
Posted by on Mon, 23 Mar 2009 20:18:00 GMT

Where?

My most active group is here on MySpace,  http://groups.myspace.com/thebraintrain. It is the largest.  I have 3 other groups on WeAreTBI.org where I'msite leader (link on profile).  This whole communi...
Posted by on Sat, 14 Mar 2009 15:16:00 GMT

Oprah

This is my profile on oprah.com.http://www.oprah.com/community/people/terese70
Posted by on Sat, 24 Jan 2009 15:11:00 GMT

same story but updated

I added an explanation of the brain to my story dated Dec. 12, 2008. It should make things easier for you understanding more of how this complex thing works.  It will hopefully giv...
Posted by on Mon, 15 Dec 2008 11:10:00 GMT

A Little about LIS, A Liittle About Me

http://www.youtube.com/watch?v=G69Zh7YIg8c   I had a brain bleed caused by somthing rare, an AVM.  http://www.npr.org/templates/story/story.php?storyId=6626814 has a picture  and capti...
Posted by on Sun, 19 Oct 2008 14:41:00 GMT

If you are planning brain surgery...

http://stu.westga.edu/~wmaples/planning.html
Posted by on Tue, 14 Oct 2008 13:02:00 GMT

speech exercises

These are actual speech exercises.  I am copying this hand-out here.  It is the best I've seen.  I've kept mine over 5 years in a plastic protective sleeve.    Hi...
Posted by on Thu, 04 Sep 2008 12:20:00 GMT

specially using the computer

Typing with just one hand can be difficult.  Sure, you can do capital letters by first hitting the CAPS LOCK key and then remembering to turn it off, but what about CTRL-ALT-DELETE?  The way...
Posted by on Mon, 23 Jun 2008 17:09:00 GMT

My Personal Story

http://stu.westga.edu/~wmaples/ronson_angela.htmlWhen I say I shouldn't be here, I shouldn't.  I've been able to narrow down that it was 10 minutes before my heart was started again.  And th...
Posted by on Fri, 23 May 2008 11:33:00 GMT

Applying for Medicaid

It occurred to me that Medicaid is just way too complicated.  Even I don't get it sometimes.    I tried to make my explanation simple, but that's even complicated.  Just apply...
Posted by on Thu, 08 May 2008 10:40:00 GMT