what do i do? |
ok. so i need advise. How do make your 5 year old go to school when he cries becasue he is in pain? This morrining Landon cried and said he was in pain and did not want to go to school. I know he need... Posted by etonyae on Mon, 14 Jan 2008 05:07:00 PST |
help Lanodon and other like him |
Hi. As you all know, Landon has Muscular Dystrophy. He needs to be on steroids but Prednisone has really harmful side effects. There is another steroid Deflazacort but the FDA will not approve it. I a... Posted by etonyae on Mon, 17 Dec 2007 11:42:00 PST |
Update on Landon |
Hey everyone,
landon went to the M.D. Clinic today. the doctor says he is doing well. he got to order his wheelchair today. he was happy until he found out he had to wait 3 weeks for them to mak... Posted by etonyae on Mon, 17 Dec 2007 09:07:00 PST |
UPDATE ON LANDON |
HELLO EVERYONE. LANDON WENT FOR A CHECK UP AT THE MUSCULAR DYSTROPHY CLINIC TODAY. HE IS DOING GOOD. HIS LEFT LEG HAS GOTTEN STRONGER SINCE DECEMBER BUT HIS RIGHT LEG HAS NOT CHANGED. HE ALSO HAD A PU... Posted by etonyae on Tue, 19 Jun 2007 05:20:00 PST |
UPDATE ON LANDON AND ME |
HEY EVERYONE!
LANDON WENT BACK TO THE DOCTOR TODAY. THEY SAID HE IS DOING GREAT! HE DOESN'T GO BACK UNTIL SUMMER!!!! I ALSO GOT MY TEST RESULTS TODAY AND I AM NOT A CARRIER FOR MUSCULAR DYSTROP... Posted by etonyae on Mon, 04 Dec 2006 01:34:00 PST |
I TOOK THE TEST |
WELL I TOOK THE TEST TODAY THAT WILL SHOW IF I AM THE CARRIER FOR MUSCULAR DYSTROPHY. NOW I HAVE TO WAIT 6 WEEKS TO FIND OUT IF LANDON GOT IT FROM ME OR IF HE GOT FROM A GENE MUTATION. I THINK I... Posted by etonyae on Tue, 24 Oct 2006 01:50:00 PST |
What is Muscular Dystrophy? |
Everyone keeps asking me " what is muscular dystrophy"? So i thought i would take a minute to explain it. Muscualr Dystrophy is a genetic disorder that cause progressive muscle wastin... Posted by etonyae on Mon, 23 Oct 2006 09:19:00 PST |
UPDATE ON LANDON |
HEY EVERYONE! JUST WANTED TO UPDATE EVERYONE ON LANDON. HIS BROKEN ARM IS FINNALLY BETTER. HE ALSO HAS AN APPOINTMENT ON NOV.1 TO GET FITTED FOR HIS AFO'S ( ANKLE-TO-FOOT BRACES) THAT HE W... Posted by etonyae on Mon, 23 Oct 2006 08:19:00 PST |